Home Menu

Site Navigation



Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
NeuroTalk Support Groups > > >

outpatient ketamine infusions

Reply
Page 2 of 3 1 2 3
 
Thread Tools Display Modes
Old 01-30-2015, 05:58 PM #11
Gunny Fitz's Avatar
Gunny Fitz Gunny Fitz is offline
Member
  
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Gunny Fitz Gunny Fitz is offline
Member
Gunny Fitz's Avatar
 
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Thumbs up Not va
Quote:
Originally Posted by Dawsonfive View Post
What hospital in VA are you getting the infusion? I've been trying to find a dr in or close to va that would let me try ketamine for chronic pain. Any info you'd be willing to share, is greatly appreciate!!

Dawson. Send me a PM.
Im not having it done at a VA Hospital because they don't even do this yet! Friggin place just started doing acupuncture 2-3 years ago so forget about seeing anything like this for YEARS!

The Dr I am seeing is in civilian sector but is a Retired Navy Doc who treated thousands of troops at Walter Reed. He is taking new patients with insurance and depends on their background. If you could give me a little of that via PM I will let you know if he's your guy ok? We start first treatment mid February. He does all the other Pain Management stuff as well. Just gave me a Radio Frequency Ablation last week which was perfect and done unlike anyone who's done it before too. Best Doc Ive met hands down!

Where you at in Virginia too btw? Im in Northern VA.
Gunny Fitz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (03-09-2015)

advertisement
Old 03-04-2015, 11:54 AM #12
Darcyreid Darcyreid is offline
Junior Member
  
Join Date: May 2013
Location: Washington DC area
Posts: 14
10 yr Member
Darcyreid Darcyreid is offline
Junior Member
 
Join Date: May 2013
Location: Washington DC area
Posts: 14
10 yr Member
Default Looking for CRPS doctor is DC area
Quote:
Originally Posted by Gunny Fitz View Post
Was lucky enough to discover a new Pain Management Dr. who spent last 7 years as the Director of ALL Pain Treatment at the Walter Reed / Bethesda Military hospitals as a Navy Commander - so you KNOW this guy has seen EVERY type of injury and treated thousands of troops with medical matters similar to mine (I was blown up by an IED in Iraq which left me with TBI, PTSD, and severe Cervical Spine damage!) I realize you may not be from military but this is what I learned.

Hi Gunny, I saw your post here and I am looking for a doctor who treats CRPS in the DC area. My pain doctor in Bethesda retired last year and I've been in a free fall trying to find a new doctor ever since. I was dxed with CRPS in 1990 after hand surgery, but it spread to my right foot now. I read several years ago about ketamine being used for soldiers at Walter Reed, perhaps it was because of your doctor. Would you mind sharing his name? Thanks so much, Darcy
Darcyreid is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (03-09-2015), Gunny Fitz (03-04-2015)
Old 03-04-2015, 12:33 PM #13
Gunny Fitz's Avatar
Gunny Fitz Gunny Fitz is offline
Member
  
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Gunny Fitz Gunny Fitz is offline
Member
Gunny Fitz's Avatar
 
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Talking Info
Quote:
Originally Posted by Darcyreid View Post
Hi Gunny, I saw your post here and I am looking for a doctor who treats CRPS in the DC area. My pain doctor in Bethesda retired last year and I've been in a free fall trying to find a new doctor ever since. I was dxed with CRPS in 1990 after hand surgery, but it spread to my right foot now. I read several years ago about ketamine being used for soldiers at Walter Reed, perhaps it was because of your doctor. Would you mind sharing his name? Thanks so much, Darcy
Hello Darcy-

I sent you all the info so please confirm with me somehow that you received it asap ok? This Dr. is absolutely AWESOME in every way too!

Be well buddy!

Gunny
Gunny Fitz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Darcyreid (03-04-2015)
Old 03-04-2015, 04:07 PM #14
Darcyreid Darcyreid is offline
Junior Member
  
Join Date: May 2013
Location: Washington DC area
Posts: 14
10 yr Member
Darcyreid Darcyreid is offline
Junior Member
 
Join Date: May 2013
Location: Washington DC area
Posts: 14
10 yr Member
Default DC CRPS Dr.
Quote:
Originally Posted by Gunny Fitz View Post
Hello Darcy-

I sent you all the info so please confirm with me somehow that you received it asap ok? This Dr. is absolutely AWESOME in every way too!

Be well buddy!

Gunny
Thanks, Gunny, just went online here to see if you got my message. This was my first time posting on Neurotalk, so I'm not sure where to look for all the information you sent me. Did you post it somewhere? I can send you my email address if that would help.

You be well, too!
Darcyreid is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Gunny Fitz (03-05-2015)
Old 03-04-2015, 08:44 PM #15
Darcyreid Darcyreid is offline
Junior Member
  
Join Date: May 2013
Location: Washington DC area
Posts: 14
10 yr Member
Darcyreid Darcyreid is offline
Junior Member
 
Join Date: May 2013
Location: Washington DC area
Posts: 14
10 yr Member
Default Update
Quote:
Originally Posted by Darcyreid View Post
Thanks, Gunny, just went online here to see if you got my message. This was my first time posting on Neurotalk, so I'm not sure where to look for all the information you sent me. Did you post it somewhere? I can send you my email address if that would help.

You be well, too!
I don't mean to be a bother, Gunny. I got a message from one of the moderators who said I don't have access to private messages yet. I need to post a few more messages so I will be able to send them and to receive them.

I was so glad to hear how helpful he has been to you. This is such an isolating disease. You need someone to have your back.

Best,
Darcy
Darcyreid is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Gunny Fitz (03-05-2015)
Old 03-05-2015, 10:11 AM #16
Gunny Fitz's Avatar
Gunny Fitz Gunny Fitz is offline
Member
  
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Gunny Fitz Gunny Fitz is offline
Member
Gunny Fitz's Avatar
 
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Default
Ok i understand. But you didnt get an email or anything from me with all that info?
When I go to your screen name and the drop down menu where it usually says "Send a Private Msg" yours says "Send an Email" so i filled out that box and sent it days ago. I would check your junk folder on the email you used to sign up here first ok?

The Doc is just starting his civilian practice after getting out of Navy (Walter Reed) and would be very glad to obtain new patients as referrals from me. Hope we can get you the info somehow?
Gunny Fitz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Darcyreid (03-05-2015)
Old 03-05-2015, 11:31 AM #17
Darcyreid Darcyreid is offline
Junior Member
  
Join Date: May 2013
Location: Washington DC area
Posts: 14
10 yr Member
Darcyreid Darcyreid is offline
Junior Member
 
Join Date: May 2013
Location: Washington DC area
Posts: 14
10 yr Member
Default Not in junk file
Good Morning Gunny,

No, I checked my email junk file yesterday and today. Nothing, there.

My Neurotalk drop down menu only has three options as of now, none of them link me to being able to send or receive private messages. On your tagline, the only thing I could do was 'friend' you, so I did that just in case.

The moderator did email me last night to say if I post some more I will have access to private messages, but I don't know if that means your message will come through then.

I'm sorry to cause you so much work. Is it possible just to give me his name and address? When I call in to book an appointment I can tell the office that you referred me.

If that doesn't work, I have no problem posting my email address here. It's been so long now since I've had a doctor and I feel like I falling into the abyss.

Hope you're having a good day. These snow day wreak havoc on me.

Best,
Darcy
Darcyreid is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Gunny Fitz (03-06-2015)
Old 03-05-2015, 12:41 PM #18
Chemar's Avatar
Chemar Chemar is offline
Administrator
Community Support Team
  
Join Date: Aug 2006
Posts: 28,459
15 yr Member
Chemar Chemar is offline
Administrator
Community Support Team
Chemar's Avatar
 
Join Date: Aug 2006
Posts: 28,459
15 yr Member
Default
Darcy
you should be able to PM and also to receive PMs

It's not a good idea to post email addresses on the forums due to potential spam

Gunny
you are fine to post the name and office contact info of the doctor here
__________________
~Chemar~


*
.


*
.


These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Chemar is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Gunny Fitz (03-06-2015)
Old 03-06-2015, 08:54 AM #19
Gunny Fitz's Avatar
Gunny Fitz Gunny Fitz is offline
Member
  
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Gunny Fitz Gunny Fitz is offline
Member
Gunny Fitz's Avatar
 
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Default
Thanks Chemar!

Darcy- I received your PM and replied back with EVERYTHING YOU NEED buddy!

Please keep me posted on how things work out now. Best wishes to you!
Gunny Fitz is offline   Reply With QuoteReply With Quote
Old 03-24-2015, 02:25 PM #20
RosieFlower RosieFlower is offline
New Member
  
Join Date: Mar 2015
Location: Ohio
Posts: 2
8 yr Member
RosieFlower RosieFlower is offline
New Member
 
Join Date: Mar 2015
Location: Ohio
Posts: 2
8 yr Member
Default Ketamine infusions, question about your doctor.
Quote:
Originally Posted by daylilyfan View Post
I went up to Cleveland Clinic the other day. My doctor there really wants me to try ketamine infusions, once a week for several weeks. I do not think my insurance will cover it. Even if they do, they won't cover doctors fee, or the fee for the outpatient room, and what they will cover will only be 70%. And, I still have nearly $3000 to meet on my deductible.

I have not worked since December, filed for disability in May. When I filed, I went in to the office to do it, and the woman there who helped me file, back dated my filing to well before I stopped working, as my employer had to make a lot of adjustments the last year I was working due to my RSD. I did not quite understand what she was doing, but it sounded like my date of onset of disability would preceed my date of stopping work... which would mean my date of being eligible for medicare would be sooner.

Now I am still on Cobra.

I am wondering if anyone has had Social Security Medicare cover ketamine as outpatient.

I am thinking I will wait to see if I get disability first time (yeah right, I know, chances are slim)... I should hear something end of Oct. or in Nov. Then, if I do, wait to get Medicare before getting ketamine. I've had RSD almost 10 years, what is a few more months wait.

Otherwise, this is going to cost me a lot of money I just do not have.
Hi, I'm brand new to all of this and I don't know exactly how it all works but I have a question regarding your post. I am currently getting ketamine infusions, but I've needed to travel out of state to receive them and I'm desperately trying to locate a doctor in Ohio who uses ketamine infusions.. Could you please give me the name of the doctor at the Cleveland Clinic who wanted you to try the IV Ketamine Infusions? Thank soo very much for your help.
RosieFlower is offline   Reply With QuoteReply With Quote
Reply
Page 2 of 3 1 2 3

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Ketamine Infusions? bbpoolgurl Reflex Sympathetic Dystrophy (RSD and CRPS) 41 12-01-2013 04:09 PM
High Dose Ketamine Outpatient Treatment janism Reflex Sympathetic Dystrophy (RSD and CRPS) 3 11-14-2011 12:30 PM
Ketamine infusions... ???? keep smilin Reflex Sympathetic Dystrophy (RSD and CRPS) 3 03-26-2010 09:09 PM
For those who have had multiple ketamine infusions Goodn'Plenty Reflex Sympathetic Dystrophy (RSD and CRPS) 3 10-07-2007 12:09 AM
Ketamine Infusion - outpatient stina Reflex Sympathetic Dystrophy (RSD and CRPS) 4 02-08-2007 12:33 PM


All times are GMT -5. The time now is 12:07 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home