Hello Everyone, I am new to this site and hope that I have something to contribute as well as learn from being here. I have had RSD for 4 years now and and in the beginning stages of making the decision of wether to amputate my leg from the knee down or try and continue to deal with the pain, medication, open wounds and constant Dr. visits. So far I have had 24 surguries on my ankle since 2003. I fractured my ankle in multiple places and felt blessed just to have it pieced back together again. Now, I'm not so sure. My last surgery was to place what is called a "Matristem" graft on both of my wounds ( on either side of my ankle). Both wounds have been non healing now for over 2 years. The Matristem graft is the bladder of a pig, yep, not kidding, and also has stem cells. So far I have had small improvement but this graft is the Dr.'s last choice as we have tried everything else and there is nothing left to try. If this does not work, and heal the wounds I don't think I can continue to deal with my leg as is. I have had every other type of graft, including my own skin, HBO for 45 days, all sorts of medication, gels, you name it we have tried it, I think. Please let me know if you think that you have had sucess with something. I would love to hear from you.
Thanks,
joannemc