So sorry Jim for all you are going through. How incredibly stressful. Remember to take care of yourself. You and Susie are in my prayers.

XOXOX Sandy

Dear Jim and Susie
 

I too, am so sorry for all that you having to endure..It is just not fair such stresses that enter our lives..Bless you both and I hope soon things will ease up on you..Thankgoodness the best part of all of this is you have eachother..That is wonderful..and again Jim, I tip my hat to you as you are a wonderful care giver and so vigulant over your sweet Susie..

Hugz, Kathy:hug:

I am sorry for all the pain and added stress the RSD causes for us plus our loved one. So many caring people on this board who all deserve health and happiness.
To the OP I know your husband can't drive but do you think he could join some group or type of hobby? I was reading this book and it said how important it is for our loved ones to take care and do things for themselves. It may give you both a break. Even without a health condition being with another person so much can cause tension. Do you guys have anything you like to do together? I know you said he lost vision in 1 eye but can he play a board game or watch a movie? I think sometimes even small things can help lift each other spirits. Not that it is going to solve things but any little lifter can help
As for finance issues I wish I had answers. People without health condition don't realize how this not only impacts how we feel but also daily life in every aspect. Jim I am so sorry and I wish you and your wife luck in Nov. You and the other loved ones who come to the board to learn and support are amazing and I hope you see that.
On a side note for the first 2 years of this I did not see anyone for the mental impact of this condition. I had in the past before my RSD/PN but had the feeling if one fixed my pain then mentally I would be fine. Well that was not happening so I went back to psychiatrist and I do biofeedback as well. Obviously mentally it is still a daily battle and the pain is high but I am still glad I went. I have learned to cope better with life and pain in general. I just encourage others who either have RSD or are a loved one with it to consider going.

Thank you so much for your loving reply. I feel like you were sitting here in my living room as you wrote your post.

I think I need the mental help. I get scared of the unknown of what each day might bring....you know what i mean. I have internal RSD and i fight acid reflux and diarrhea and lots of little problems that i dont know if they are RSD or something else. It makes Steve crazy that i take so much medicine both prescribed and OTC. I read all the different posts here and hate to whine about my own problems when there are so many others that suffer in their own ways.

Steve and I went to a concert at our local Library Sunday night. We have a very nice time. I had to sit in my wheel chair he sat behind me and we held hands and just enjoyed being out together. There are many Fall festivals where we live and we are planning to go to some of those. I hate that he has to push me in my chair, but he doesnt mind at all. Hes glad to be out together too.

So after all my thinking which i over do...i think with all the advice I received here...i think we will be okay. I will check for mental health help at my local county facility. My health insurance doesnt offer good coverage.

Wishing you a blessed day and many thanks!
Lori

Dear Lori~
 

Honey..I KNOW you will be okay...As I read your post, it really reminded me of a part of my life with my RSD, not long ago..when I had those daily up's and down's not knowing what kind of day it would be when I picked my head from my pillow eachday..When I read a note here from one of our friends explaining..that we must cross this bridge as part of our illness..call it the ole' admission step or what ever but we are so devestated about wht is happening to us that our emotions are all over the map and our symptoms of everything are too..WHY?? Cuz we have no control of what our destiny is.. It takes time to get over that bump in our road..not necessarily giving into it but accepting that yes that is true..Not only do we give up control but every aspect of ourselves.. what we are made of..our hearts and soles are open to RSD... but there comes a point when we become more connected with our illness..we are not crazy only different than we were prior to beginning ill.. so you are fine honey..Just at that point were you can open your mind and heart for whatever comes your way and in the mean time..love yourself and we love you too...

Hugz, Kathy:hug: