Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-14-2007, 12:18 PM #1
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Default Support Paula Abdul

all RSD sufferers lets support our fellow sufferers. go to USmagazine.com
there is an article written about paula being "wacky" while on telly. i have posted 2x now that she is telling the truth about not taking drugs or drinking. i also have difficulties sometimes when i speak. also there are days when i cannot sit still at all. these actions don't mean i'm taking drugs or drinking. so i would like you all to go there and post comment about your RSD. let's support paula.
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Old 02-14-2007, 01:09 PM #2
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Default Hi Duchess,

We have talked about Paula Abdul before on here. We discussed what everyone thought about her being a spokes woman for RSDS.


This is my feelings about her from all I have seen of her. She is a fly by night with no lights on.

I honestly don't think she would make a good spokes woman because she is either on too many drugs or drinks with the drugs. I can't count how many times that woman has been on TV and acted drunk I honestly have never seen her act normal on TV.

She never talks about her RSDS. All she has talked about on tv is her anorexia or bolemia. RSD has been mentioned only vagely one time in a magazine by her that came out last year that I read.

I would like to see a famous person become a spokesperson for the RSD such as Micheal J Fox did for his disease. But in my opinion she is not it. I don't want people to think I have to be overmedicated and act like she does with RSD.

Ada
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Old 02-14-2007, 01:21 PM #3
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Default

But- I am very surprised that she does any interviews when she in in that out of control condition - whether it is from pain, meds or other reasons.
It just doesn't reflect well on her, if it is pain or something causing her to slur and act drunk then she should say so during the interview.

I thought I read that she was cured or in remission of her RSD??.
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Old 02-14-2007, 02:41 PM #4
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Default Jo,

You bring up an interesting statement. IF she is in remission or cured what would be her excuse for the meds and acting the way she does.

I am thinking I read awhile back that they decided she didn't have RSD. I heard that on TV.

I did see E News channel when they did her story and I don't think RSD was even mentioned if so it was only once.

She just acts too out of it at any time to be acting normal.

Ada
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Old 02-14-2007, 06:56 PM #5
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Default hmm..

I think we should suport her, (I do) it;s not like we are asking her to be our spokes person, that someone needs to be pasionate about getting the word out and she is not that person.

But I do not think we should abandon or condem her actions if we do not know of her circumstances, she may be changing meds or anything, I do not have a day where my mental facultys are very sharp for long.

happy valantinesday everyone.
Super soft hugs,
Sandra
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Old 02-14-2007, 10:49 PM #6
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Default Paula

Paula does not have RSD - The statement that said she had it was retracted from her doctor -she does suffer from pain - I think its arthritis

We do need to find a famous person who can help us!

Debbie
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Old 01-19-2008, 07:48 PM #7
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Default RSD Nightmare!

I was diagnosed with RSD in 1999, and it was unbearable. The doctor told me they had never seen the skin changes so quickly. But the fast skin changes was lucky for me, that the doctor recognized the RSD and started immediate Stellate Ganglion Blocks. I have some damage to the bone and muscle, but not too bad, and I had a severe case of RSD that went into remission with the blocks. I now do not have to take pain medications, except for over the counter, and I have been truly blessed. What I do not understand, is that if Paula Abdul has RSD like I had, there would be no way for her to work (it is too hard to just breathe and not commit suicide) If it is in remission or cured as she says, why all the drugs?
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