NeuroTalk Support Groups - Is There Such A Thing As Mild CRPS?

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- - Is There Such A Thing As Mild CRPS? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/134539-mild-crps.html)

Quote:

Originally Posted by stressedout (Post 702593)

When my Dr diagnosed me over a yr and a half ago he said I had "mild crps" too. There is nothing mild about my pain, just because I have been able to maintain function of my hand by doing therapy every day does not make it mild. I know it can be much worse...thats why I work it every day. I had a compound cream prescribed in the beginning, it helped but not enough for ins. to pay for it. He is seeing alot of physical changes and "progression" lately so now is recommending a pulse radiofrequency ablation. I had blocks last yr that gave me 10 days of relief, it was like a vacation. I had very little pain but the swelling and discoloration was still there. I'm just hoping it works...I'm tired of this.

I really understand how you feel. I also do water therapy and keep my hand and arm moving. Before the block I wasn't able to complete a therapy session without stopping because of pain and my hand felt like it was locking up on me. After the block I was able to complete therapy but later in the day the pain would return just enough to remind me that (IT) wasn't done with me yet! I have carpal tunnel in that same left wrist, and cubital tunnel in both elbows that are also painful. I have plates and scews from the surgery that are very painful and can't come out because of the CRPS.

I am sick and tired of being sick and tired!!! At least you had more than one block and they are trying other invasive things to help you. I hope it works for you...good luck.

Quote:

Originally Posted by bari.o (Post 702507)

How long have you had it?

Sprained my left leg pretty well in '03 and it started, then got dx'd in 2008. From everything I've looked at, the first year is the critical one. It's done some spreading and the level of pain has increased, but that's par for the course.

Quote:

Originally Posted by lefty (Post 702620)

It was my workers comp pain doctor that did the block, and wrote in his report that I didn't have it. His report was relaid to me by my attorney. But when I went to see him he did said nothing about me not having it, only that it was a mild case of it. Why would he write on thing in his report and tell me something different. I had relief for a very short period of time after the block. Now it's back with a vengence! I showed him how red my hand was, and how it was starting to swell. He said it was a normal reaction to my condition. Stressful things like this really makes me flare up. I can't take this guessing game any longer. I don't know how many cases this Pain Doc has seem when it comes to CRPS, I don't really trust him. But I can't get a different doc because he is already my second workers comp pain doctor.
This condition was seen after they closed my case but before the could make me a settlement offer. So now the CRPS would reopen my case and they would have to start all over again. I hope that makes sense.

Hi lefty,
I think that if it's timely and you can open your case back up you should. I know w/c drs. and the entire situation of w/c is horrible, but you need to do what's best for you. When I had my blocks my PM did them and it all had to do with the temp in the hand after the shot. Also I had to go straight to the hand therapist from the hospital. Perhaps there was no change in the temperature of your hand after the first shot?

On another level, I would say that doctors in general, don't remember from one visit to the next what they said or didn't say, even though it's all on the computer!!! My primary doc has asked me on a number of occasions...'remind me again why I gave you this med?' And people wonder why you don't go and look for another doc. It's bad enough to have to start over each visit, but to have to start reviewing my whole life to someone totally new is ludicrous to me.

If your hand is looking and feeling worse, please stand up for yourself and make them listen, even if you take pictures of your hand day to day and bring them with you, I would do that. from everyone on this board and in my own case; we only have a certain amount of time before it cannot be reversed. Sending good vibes your way...cathy