Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-08-2010, 09:18 AM #8
lefty lefty is offline
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Join Date: Jul 2010
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10 yr Member
lefty lefty is offline
Junior Member
 
Join Date: Jul 2010
Posts: 49
10 yr Member
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Quote:
Originally Posted by stressedout View Post
When my Dr diagnosed me over a yr and a half ago he said I had "mild crps" too. There is nothing mild about my pain, just because I have been able to maintain function of my hand by doing therapy every day does not make it mild. I know it can be much worse...thats why I work it every day. I had a compound cream prescribed in the beginning, it helped but not enough for ins. to pay for it. He is seeing alot of physical changes and "progression" lately so now is recommending a pulse radiofrequency ablation. I had blocks last yr that gave me 10 days of relief, it was like a vacation. I had very little pain but the swelling and discoloration was still there. I'm just hoping it works...I'm tired of this.
I really understand how you feel. I also do water therapy and keep my hand and arm moving. Before the block I wasn't able to complete a therapy session without stopping because of pain and my hand felt like it was locking up on me. After the block I was able to complete therapy but later in the day the pain would return just enough to remind me that (IT) wasn't done with me yet! I have carpal tunnel in that same left wrist, and cubital tunnel in both elbows that are also painful. I have plates and scews from the surgery that are very painful and can't come out because of the CRPS.

I am sick and tired of being sick and tired!!! At least you had more than one block and they are trying other invasive things to help you. I hope it works for you...good luck.
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