Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-29-2010, 07:36 PM #11
RNcrps2 RNcrps2 is offline
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Good luck Cake. Lyrica has really helped me and I've read a few articles on Mg infusions that sound promising. Hope you get relief. momof4
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Old 05-30-2010, 04:35 AM #12
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Quote:
Originally Posted by Cake View Post
This is our next plan of attack for me

I started the Lyrica last night, at 75mg then going up over the next few days till I get to about 225mg daily. I haven't had any bad side effects yet, just a migraine that's been going on all day, but I can put up with that

I'm also waiting for a magnesium infusion, hopefully that'll be soon (Dr put me down as Priority One, to get it done asap as my RSD is so out of control at the moment- with it spreading to my foot and up to hip, and also symptoms coming back in my arm that I haven't had for over 2 years). It works the same way as a ketamine infusion, but is only a day procedure, so I'm only in hospital for one day. Its another one of those things that helps some people, but not others (as with all RSD meds ) but I'll give it a shot.

I'm very lucky to have a great RSD doctor who never questions what I say about my symptoms etc, and can get me access to the latest and most successful medications and treatments, I know a good RSD Dr is hard to find so I'm hanging on to this one! As much as I hate the cold weather here in Melbourne and would LOVE to move north, we're staying here so we can be near my RSD dr, as that's so important.

Anyway, I'll let you know how I get on....

x Kate
Hi Kate,
I had some good results with lyrica till a realy bad side effect made me stop taking it, catastrophic thoughts, suicidal thoughts.. just out of the blue, nasty stuff not like me at all.. and not all about me either it just wasn't nice. Aparently some people have killed themselves on these drugs.. so just be aware ok.

Healing ((hugs))
~Sandra
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