NeuroTalk Support Groups - rsd has spread through entire body

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- - rsd has spread through entire body (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/134867-rsd-spread-entire-body.html)

Quote:

Originally Posted by bigsav32@yahoo.com (Post 703973)

hello DAWN,thankyou, going with DR SWARTZMAN in PHILLY,I have all the confidence in him an his staff, just nervous of the procedure itself. Don't know why since i've had the dorsal column stimulator three times. that was some pain,infected all three times. now everything out,pretty much meds every day

Maybe I'll see you there! :p I'm doing my 5 day in patient with Dr. Richman and then my outpatient boosters with Dr. Schwartzman since I'm closer to Philly and Dr. Richman doesn't do them.

What date are you going in?

ketamine/marinol

Quote:

Originally Posted by bigsav32@yahoo.com (Post 703546)

i to am scheduled for 5 day inpatient stay ketamine procedure.not sure what to expect,pretty scared,my wife is totally against me having it done.its just what started out in my foot has totally taken over my body with pain. i get up taking pills, go yo bed taking them,along with the day daily dosage also.going on eight years now.pretty much tried every thing.been black balled by local doctors because of mirenol useage failed a couple of urine test.came up positive. not gonna lie, it really help me sleep at night,tried to smoke,it made the burning worse,but at least you were in a good mood, an you eat,i use to weigh 180 dropped down to 140 with all the meds,the smoking gave me the munchies,made you feel good angot my weight back,along with kept your mind off the pain.the doc, are totally against anything they can't make money off of.since i stopped because of having to find a new doctor,its just pain all the time,really sucks.

I have a medical marijuana card, thats how they do it here in WA and OR, it helps me sleep more then 2hours, helps with the nausea and reduces the sensitivity in my leg. I have great Dr's here and my pcp actually recommended me to the marijuana clinic. I have seen 7 Dr's and the 3rd one knew it was RSD and referred me to the other 4. They have been miraculous in the reduction of my pain and with just basic human assistance. I still have a lot of pain, but it is less edgy stabing with the marijuana. We also have great weather her its mild and its helpful for less pain with my RSD. We rarely have more than a week of snow or temps below freezing. i hope your procedure goes well, I am not very knowledgable about that.

Quote:

Originally Posted by Reddawn600 (Post 703981)

rescheduled me to the mid month of november due to the fact that the insurance co is now running me around to several of their docs,who believe theres' nothing wrong.its amazing i take 600mg neurontins every 4 hours to keep me out of hospital. the burning is that bad,may sleep 4 hours a night if that,i still have to prove myself to them.it was amazing how DR.SWARTZMAN,when examining me pick up on all my symptoms right away.i literally cried right there on the spot,eight years,millions of doctors,and five minutes with him,i didn't have to go to the extreme any more.i think my tears were,tears of joy.just was happy someone believed in me.

RSD & marijuana...........

Am & have been prescribed Morphine ER, 200 mg's 2 x's a day, along with Hydromorphone, 8 mg's, up to 3 x's a day as needed. Also take klonopin & baclofen for muscle spasms. I'm subjected to urine tests, normally every 5 to 6 months, but "on the sly," have tried marijuana a couple times a day, I reside in Iowa, where it's still illegal, but when using, I've been able to cut my pain med use almost in half. I'm afraid to mention this to my 2 pain docs, not wanting to be cut off, but am now having liver trouble, high enzymes, I'm wondering if I'd be better off using marijuana, again "on the sly," hoping & timing it, praying I don't get caught. Any suggestions ??