my hair was thin to begin with now its almost non exsitant it falls out if the wind blows LOL the have also bitten my nails so i cant answer that one. have no curl to hair but i have white spot that is down the back of my head underneath and the color went from california blonde to dirty blond have to dye now because of the bright white i look like cruela deville LOL

heres another question anyone else got acne type things goin on ? i never did till 2 yrs ago i wonder if its the sweating ? anyone else ?i do have the groved nails toes and hands

Hi everyone,
First I want to say this is a pleasure listening to you veterans. You have so much to share and such knowledge. Even though i am a sort of remission state I still have questions and have an eagerness to learn about my illness........just want to thank you all.....you really make a difference.
Now while I was swimming through this thread caught my eye. My hair is growing extremely fast. Fortunate for me my daughter is hairdresser. My nails also grow much faster during flare but have slowed now again. There are vertical ridges on fingernails and also crack in middle or split in layers. Coconut oil on them at night helps some or almond oil unscented. I actually kept them short (painfully so) but more painful when they touched skin. It is common for me to have sores around nails treated with anti fungal meds. the dr. believes due to long standing antibiotic treatment from lymphangitis and cellulitis. Old infection 8/07 from injury.......but fungal stuff still resurfaces....on probiotics also.......

Thanks again my friends,

Debbie

First off Carrie, I would gladly give you some of my hair. Mine is very thick. I have to have it thinned at least 2 to 3 times a year. When Bill and I got married they couldn't get it to stay up because of the length and how heavy it was. It's still pretty thick. It's about the color of yours so we wouldn't have to do much to it to make you a wig. LOL

Hi Debbie,
By you being in remission I can almost bet that you have as much to share with us as we do you. I am glad you are doing good and I'm sure some of the things you have done to get there would help many on here.

My toenails have ridges also. My fingernails seem to be growing a little more these days. I drink lots of milk and I think that's helping. I've never heard of the coconut oil being used for the nails, nor almond oil. Told you that you'd have a lot to share with us too. I will try it. I would love to keep my nails from cracking and breaking. I snag everything with them.

My hair grows slow. It's funny how it either goes one way or another with RSD. I wish mine would grow faster.

I don't have to shave my legs as often due to no hair growth. That's a good thing.

Ada

yea please share. my oldest has shirley temple curls since a baby she gets it from my husband they both have brillo pad thick hair and curls that dont stop he keeps his short hers is past her butt when wet ..

yea that would mean no dye job for the wig LOL

debbie im so glad that you are in remission. never heard of the oils for the fingers i couldnt do it tho my youngest has nut allergies so we are stricly nut free. !!! sounds like it would work tho !!!!