Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-15-2007, 11:18 AM #1
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Default Hair and Nails,

I have to pet peeves that are driving me nuts and I wanted to ask you about them.

First my nails. No matter what kind of nail polish I use it will not stay on my nails. No matter how expensive.

Second, my hair has curls in it that I never had before I got sick. Could meds do this? Sounds crazy but my hair gets curlier all of the time and I hate it.

I'm wondering if these are connected to the meds or the changes in our bodies from the illnesses.

Thanks guys,

Ada
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Old 02-15-2007, 11:21 AM #2
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I have noticed that my hair has taken on VERY different changes since getting RSD. I have gotten curly spot on the under side of my head.. and the rest is straight.. AND that it has changed colors! notthing drastic, but i had a light brown/aubrun hair color before and now its a medium to dark brown. you can tell where the colors change bc my hair is very long.. i just dont want to dye it or cut it.. soo..lol

Youre not alone..


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Old 02-15-2007, 11:40 AM #3
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Default Hi Amber,

You hit the nail on the head. Mine is curlier underneath. The top is pretty much straight but I can see it is getting some curl. As far as color. My hair is blonde. Not my natural color but I went to blonde a few years back just to see if it would make me feel different. I just try new things every once in awhile to see if it will perk me up. Nothing does for long but I do try to keep myself up so when I go out I look decent.

Your hair is about the color mine was and as long. I like it on you.

Ada
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Old 02-15-2007, 12:02 PM #4
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Could be something to do with sulphite suplphite bonds? (That's what causes curls - you get a S=S trple bond or something in the hair.) Not sure how it could occur? maybe Sulphite is more likely to occur with skin deoxygenation?. I only have A level chem so can only guess - wiill ask some people..

Also, my hair has changed as well - it's not as red as it used to be and has now gone strawberry blonde, it also falls out REALLY easily.. nails - don't even go there.....

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Old 02-15-2007, 12:17 PM #5
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Talking Hair\Nails



I have not had the curlly problem on the hair side, but the grey's seem to be poping up more often. I am not taking Sulfates so maybe this does have something to do with it.

Also, since going on the Lyrica my hair has been falling out of my head rather rapidly. The Dr's cannot find it on the side effect list and said it may be stress related. Do not know but I think it is stinky LOL

Nail polish. My nails have been quite brittle and are pitting and groved since July 06. I frequently have been cracking them right at the qick area and placing clear nail polish on them to assist them in staying until the grow past the quick point. The polish only lasts a day or two and if I soak them in the water they automatically need to be redone (bathing, showers, dishes). I think is because real nails do not hold polish as well as fake nails. Nails are porous and when you get them wet they expand and contract. This causes the polish to chip and peal.

Just my 2 cents. Hope this gives a little insite....

Gentle Hugs

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Old 02-15-2007, 02:08 PM #6
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Default

I would suggest taking some MSM - you can post and verify with Mrs D for interactions and safety.
or use the interaction checkers in the sticky here- I'm sure i posted them here as well as the TOS forum.

It is a version or in the family of sulfur but doesn't usually cause any allergic reactions like sulfur medicines.

I used to have good links for it but lost them.
I took it regularly when I had my severe RSI and also again when the RSI/TOS showed up 2 yrs later- but have been lax about taking most of my vits and supplements since the kitchen remodel - just got out of the habit - since everything was moved around.

Supposedly it it good for so many body and cell functions- and it did make my nails grow and my hair texture was much smoother- I have thick coarse hair.
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Old 02-16-2007, 10:38 AM #7
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Tongue Hair / Nails

I have curly hair and if anything it has gotten straighter...go figure!!! It also has gotten very thin to me anyway - and that's what counts - right?

The nails - I was told from the very beginning(or read about it) that brittle and breaking nails are a symptom of RSD. I finally gave up on trying to keep them colored or even just clear cause they were all different lengths and just looked ridiculous. I do try and buff them at times. First they grow, then they begin to break; what I've noticed most is that mine are breaking and cracking vertically in the center tip of the nail, not at the edges where they used to. So for me, that's how I know that it's rsd related somehow.

The positive side for the hair I haven't figured out, BUT the positive to the nail condition is that it sure saves me a whole lot of time!!!

Have a great and pain free weekend to all.
Cathy
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Old 02-16-2007, 11:45 AM #8
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Default Thanks for the replies,

Cathy, mine are breaking in the center also. I also tried 4 different times to get fake fingernails at 4 different places and they wouldn't stay on. They would start falling of in just a day or two.

I can't remember ever having good nails though even before RSD.

Thanks to all of you,

Ada
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Old 11-19-2007, 10:36 PM #9
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Question Nail growth and nail loss

Hi all! I am new here. My nails have grown like crazy, but and this is a big but, they are separating from the nail bed, are grooved and pitted and have started developing dark spots under the nail. Any idea on what sort of Doc I should see about this? My Neuro and pain doc just looks at them and informs me "well, it is progressing, and we don't mean in a good way". Thanks Doc!

I note you all have spoken about hair, mine was always silky, but now it is like straw, no change in color, but will keep my eye on that one.

Thanks in advance for any advise and nice to meet you!
TevyesDaughter
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Old 11-19-2007, 11:10 PM #10
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Default Hi and welcome,

My nails drive me nuts still. They break off so bad. I try and keep them polished in hopes they will grow more or not break anyway. It doesn't work. The polish doesn't stay on to protect them anyway. They still break in the middle and I am constantly using clippers on them to even them out.

As far as my hair. I seem to lose a lot when I wash and comb it. It still curls underneath. I used a straightener on it not long after I started this thread and it didn't keep the underneath straight.

I go through times where it feels lifeless and feeling like straw too. I believe it's when I am having my worst days in pain and everything else that goes with the RSD. What I do is sleep with conditioner on it. I'll put a shower cap on it so as not to get it on the pillow. That helps. It doesn't grow fast either. It use to but since RSD it doesn't. I haven't had it cut in about 8 years. A normal person it would be twice as long as mine, I have seen that from comparing to others.

Just some of the perks of RSD that never seem to go away.

Ada
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