Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-20-2010, 12:24 PM #1
snowboredchick1 snowboredchick1 is offline
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Join Date: Oct 2010
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snowboredchick1 snowboredchick1 is offline
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Join Date: Oct 2010
Posts: 5
10 yr Member
Default What should I do next since the RSD is spreading?

PLEASE RESPOND AND LET ME KNOW OF ANY IDEAS YOU HAVE.....

I want to know if anyone has found a way to make doctors listen to you when they have tried everything and none of it works. How do you get them to do what you want them to. Because I know what I'm asking. What I am asking is that they do a Sympathotamy or amputation of my right leg from about 3 inches above my knee. These are the last two things that the military doctors have not tried and they are not giving in to what I have been asking. The Sympathotamy is less drastic then the amputation of course but at the same time with the Sympathotamy I wouldn't be able to move my leg anyway so I still wouldn't be able to learn how to walk again. Incase you don't know what a Sympathotamy is I will tell you: for me the doctors would go in my lower back and follow the synethic nerve to the spinal cord and then they would cut it as close as they can and then carterise the nerve. It has been proven that it provides relief but it is really risky because of how many nerves are there and cutting it close to the spinal cord wouldn't be easy because the closer you get to the spinal column the closer the nerves are to one another. But to me I told the doc's that I don't really care any more about side affects and stuff like that because I have already been through so much and I don't see how it could make my leg any worse because I am already wheel chair bound. And that is why I am pushing for amputation because with that at least I will beable to try and learn how to walk again. And to try and live my life again.

Thank you and PLEASE RESPOND TO ME.

Tina
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