How does RSD affect the intestinal tract and stomach?

Ada

Hello Ada!

To answer your question,
I think the effects are not good.
Yesterday for instance, (Monday) I had to get up and GO! I had a load of thing to do. I had a cup of tea *the round bags from tetley, which Can be strong, but I had some nice tupelo honey, and skim milk. Still, it was a big mug (that I didn't finish). So, I got to work. Had a busy day, from around 9AM, til well after dark, never any heavy work, but lots of thinking, and planning.
Still, in the AM, before I left home, around noon, I was in and out of the bathroom, (emptying) but not diarrhea, but crampy.
Then, I had a great day, took two diarrheal pills and some valium and I had a great day, I must say.
I finished wash around 10.30.

Today, forget it!
I couldn't move, not enough to grab my pain meds!

Overall, I must say that the 'nervousness' of RSD really messes around with my intestinal tract, and I must keep valium, (I can't for the life of me remember the name of the anti diarrheal, since I buy the store brand.) and my pain meds in a pill box in my pocket. (I certainly know why ladies carry a bag).

My stomach can be a mess too, I keep Tums at home, not that I need them too much, but Cramps are my biggest problem, if I'm not too careful.
My personal problem, is that I Love Hot Foods, *Spices.
Not that they hurt so much, but, heck, I don't know what goes on in there!

I wish you well~~!!!

Pete

We have the opposite problem. I have constipation. I am on Amitiza to regulate me and it seems to be working along with the Metformin. The past 2 weeks I have had a burning in my stomach and and empty feeling, even after I eat and nausea. I first thought I was coming down with something but I don't think it's that. I tried to find info on the RSD in the intestinal tract but couldn't.

I carry some of my meds everywhere I go. Those pillboxes sure don't hold all you need.

I use to love hot spicy foods but not anymore. I know they don't go with any kind of stomach problems. I'm on Nexium for GERD and PUD so when you are already on stomach meds, you know to watch what you eat. Some foods don't agree with us that should. I like tea, but tea makes me sick if I don't eat something before drinking it.

I am allergic to valium so I don't even try that. It's hard finding the right thing that helps when we are having stomach problems. I was just wondering how the RSD affects the stomach as far as symptoms.

Thanks and have a painfree day.

Ada

Gastroparesis is something that various RSDers have talked about. I'me not quite sure what it is, but you could look it up.

I never know if my stomach problems are from all the meds I take or the RSD... hard to tell!!

All the best, Sandy

I knew a couple a people who had rsd in the stomach. One girl specifically she would become dehydrated because she was unable to keep fluids and food in her system. Her limbs had rsd as well. After many failed treatments she found a treatment that helped her overall with her rsd so now her stomach is doing much better along with her limbs.
As for constipation I think between meds,lack of activity,stress etc for some it can cause consitipation. I have such a sensitive stomach. Spicy foods and me don't mix at all.
I hope you feel better.

Hi Ada,

Lindsay has been having a lot of trouble with her stomach, vomiting etc. She ended up in the hospital dehydrated and was treated with iv fluids for several days. I took her to see Dr. Kirkpatrick and he said the only way to tell if it is in the stomach is to infuse with Ketamine if the symptoms go away then it is in the stomach...He also recommended a Benedryl infusion, he said that would calm down the stomach. I hope this helps. I am so sorry you are suffering.

Hugs Sandy

Thanks for the advice.
i have had stomach problems since the 90's. I believe I had RSD long before a hand surgeon diagnosed me. The U of C put shots in my stomach but never diagnosed me with anything. My stomach started shutting down 3 years ago and we have been working on it. I went to see Gastros that were useless. The one diagnosed me but didn't know what to do for me.

I deal with nausea a lot. Not a day goes by that I don't have it a few times a day and the burning started up about 2 weeks ago. I saw my Dr.Wednesday and of course we dealt with inside pelvic pain and talked about my stomach and my chest pain. I go back this week, he wants to see how I'm doing and hopefully we can separate things and figure out what's causing what.

I hate winters anymore, the whole damn winter, I will be worse off.

I think too it's a matter of watching what I eat but I am having trouble with that part. I'f I eat something different then I usually do then I have more problems.

I know the meds cause constipation too. That's a side effect of a lot of them. In the winter I have to take the Methadone so I'm sure that's not helping. My dosage is low but it still causes problems. I do keep busy and I do get stressed a lot. I now have 2 teenage drivers, they are in and out of here when they drive to town so I worry about them. Mom is more relaxed about it then I am. My Dr. says I worry way too much? Is that part of RSD? Like everything else it's multiplied.

That's interesting about ketamine infusions for the stomach. I doubt that we have a Dr. in Colorado that even knows what they are. I doubt that I could do them anyway, I have too much trouble with any meds.

Sandy, what are they doing for Lindseys' stomach. I'm on Amitiza, Metformin, and Nexium. It helps but I just think it's getting worse. I hope they find some help for Lindsey.

Thanks,
Ada

Hi Ada,

I am calling Dr. K. on Monday to set up an appointment for the Benedryl infusion. I will let you know how it works. But, if you look at the post that say's Benedryl for burning pain, they mention that it helps. Who knows maybe this is one proven medication for RSD.

Sandy

My tummy, I feel a 90lb weight mid tummy after I eat and lasts for HOURS.. Seems to be my esophagus and tummy connection and food is not dropping into my tummy very well...Ihave been feeling this about a month or so...down 6 lbs... I am cold turkey RSD due to sensitive tummy so no meds involved...and have also heard the parasatsis, Dysphagia can be RSD getting to to our Tummys.. Anyone feel this...???? It's miserable!! I feel aweful... No diarrhea ...actually pretty scant BMs at this time..I can't eat!!! Can anyone verify that RSD can cause this?? I started Reglan yesterday and Gastro apt. Monday.

Thanks, KS