Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 02-16-2007, 07:19 PM #1
InHisHands InHisHands is offline
Member
 
Join Date: Dec 2006
Posts: 808
15 yr Member
InHisHands InHisHands is offline
Member
 
Join Date: Dec 2006
Posts: 808
15 yr Member
Lightbulb What hobbies have you been able to do with RSD/ CRPS??

I was wondering what hobbies you have been able to do and enjoyed?

Something that still keeps you moving, but isn't unbearable, and you enjoy doing it??

A hobby has got to help keep your mind on something other than pain, and is something you can enjoy (RSD hasn't taken it away)... so what is yours?

I am trying to find something that I can manage doing and enjoy, while not dying in pain trying to do it.

Any ideas?

I'm thinking about making some more things out of sculpey clay, computer work, etc... I enjoy using the computer, and I have been able to learn to type even with RSD affecting my hands (it has gotten better over the past months, so that I am not so shaky and cramped up typing).

Doing a hobby is a way to "continue on with life" so as not to get depressed and feeling like you cannot do anything... right?

I'd love to hear what you all enjoy doing while you are living with this terrible RSD.

Thanks.
InHisHands is offline   Reply With QuoteReply With Quote
Old 02-16-2007, 08:29 PM #2
nikmcjo nikmcjo is offline
Member
 
Join Date: Jan 2007
Posts: 116
15 yr Member
nikmcjo nikmcjo is offline
Member
 
Join Date: Jan 2007
Posts: 116
15 yr Member
Default

It has been very hard for me to find something else to do in my spare time. I went from being in gymnastics 24 hours a week along with school to this....

I think it has helped SOOOOOOOOOO much having my cat around. If you aren't allergic to animals or anything, I would HIGHLY reccomend getting a cat or even a non-hyper dog. They help for company and they keep you moving. My cat can sense when I am having a bad pain spasm so she is near me when I need her most and she has learned to stay away from RSD affected areas which helps lots.

Aside from that, pets like to play sometimes so it is good for the exercise to play along. With a cat, hold string above her head and watch her jump for it or for a dog, play fetch with a small foamy ball. It's fun and it takes your mind off of the pain a little bit. Then they can cuddle with you when you need it most Just make sure not to get a hyper dog or kittens. It is best to get an older pet because they are older and more wise and it is easier to teach them to keep away and not to touch RSD areas.

I also like doing sudoku puzzles and computer stuff. It doesn't keep me moving, but it helps when I am lazy and don't feel like doing anything.

Best of luck
nikmcjo is offline   Reply With QuoteReply With Quote
Old 02-16-2007, 08:40 PM #3
BroadwayBaby's Avatar
BroadwayBaby BroadwayBaby is offline
Junior Member
 
Join Date: Feb 2007
Posts: 44
15 yr Member
BroadwayBaby BroadwayBaby is offline
Junior Member
BroadwayBaby's Avatar
 
Join Date: Feb 2007
Posts: 44
15 yr Member
Default

I definitely agree on the pet thing - my dog is the best therapy ever! Other than that - it depends where you're affected and how badly. Do you play any intstruments, and would you like to learn? Great outlet, also lets you focus really hard on something. Same for writing, painting -anything artistic. It doesn't have to be brilliant, right? It's just got to be you.

Other possibilities - sewing/knitting (I'm really bad at those, so I do latchhook - also, doesn't require much dexterity), jewelry making, gardening.....depends on what you like and how your mobility is.
BroadwayBaby is offline   Reply With QuoteReply With Quote
Old 02-16-2007, 09:27 PM #4
Rainbow422's Avatar
Rainbow422 Rainbow422 is offline
Junior Member
 
Join Date: Jan 2007
Location: WNY
Posts: 60
15 yr Member
Rainbow422 Rainbow422 is offline
Junior Member
Rainbow422's Avatar
 
Join Date: Jan 2007
Location: WNY
Posts: 60
15 yr Member
Talking My 2 cents

My RSD is in both hands, wrists and arms. Believe it or not I have been using crocheting to help strenthen my limbs. It is not alot, but I think it is helping. It also helps me from getting really depressed. Gives my brain other focus besides the CRPS. I thought my world was taken from me in 7-06 but I am learning and adapting.

With the RSD, sometimes I cannot type a key. My Friend got me the best christmas present. Dragon Naturally speaking Version 9. You talk, it types. Really helps out when I am in crippling pain. Takes a little patience to get it trained and a little cash to buy the package but well worth it. I do not know what I would do to smile if I did not have my groups to chat in. When I was not using the computer at all, I was extremely depressed and everyone was really worried that I was being mentally crippled by my diagnoses. Now I have my groups no matter how I feel.

praying for less pain days for all of us!

Gentle Hugs,

Rain
__________________

.

.
Rainbow422 is offline   Reply With QuoteReply With Quote
Old 02-16-2007, 09:33 PM #5
AnnaBananaBean's Avatar
AnnaBananaBean AnnaBananaBean is offline
Junior Member
 
Join Date: Oct 2006
Location: Janes-Vegas, Wis-compton (aka Janesville, Wisconsin)
Posts: 24
15 yr Member
AnnaBananaBean AnnaBananaBean is offline
Junior Member
AnnaBananaBean's Avatar
 
Join Date: Oct 2006
Location: Janes-Vegas, Wis-compton (aka Janesville, Wisconsin)
Posts: 24
15 yr Member
Default

art has honestly been the only thing thats gotten me through all this. I usually spend about 2 hours a day drawing in my sketchbook, along with the 5 art classes i take in school. It helps me calm down and destress, and its always so rewarding when you finish a piece and look at it and go "i did that!". I'm in numerous art related clubs and a few of my recent pottery pieces just got sent to a state competition!

art has actually been so theraputic for me im going to college next year to major in Art Therapy and hopefully work in a children's hospital someday so i can help kids like me!

good luck!

anna
__________________
"I learned that life isn't necessarily easy but it is always worth figuring it out. That, if nothing else, has had the most profound effect on me; learning that sometimes your circumstances suck, but life doesn't."
-Andrew McMahon
AnnaBananaBean is offline   Reply With QuoteReply With Quote
Old 02-17-2007, 12:42 AM #6
dreambeliever128's Avatar
dreambeliever128 dreambeliever128 is offline
Magnate
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
dreambeliever128 dreambeliever128 is offline
Magnate
dreambeliever128's Avatar
 
Join Date: Nov 2006
Posts: 2,088
15 yr Member
Default

This is a good question. I was just wondering what kind of hobbies people are still able to do and if they think it relates to the RSDS that they still can't do them physically and mentally.

I use to make jewelry and I kept my kit thinking that someday I would be able to get back to it. Not happening yet.

I also love antiques and Bill and I delt in them for years. Buying, selling, and trading. For the past 8 years it was him doing it all. Now I can't even concentrate on doing it. I have a shed full of antiques and I could use the money but I just cannot bring myself to do it.

Ada
dreambeliever128 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Nerve Blocks for RSD/ CRPS?? InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 11 06-25-2014 05:42 PM
Doctors for RSD/ CRPS in PA, NJ or DE? InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 57 09-02-2013 07:40 PM
When you were first diagnosed with RSD/ CRPS InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 15 02-20-2007 08:26 AM
is crps disease? eileen15565 Reflex Sympathetic Dystrophy (RSD and CRPS) 15 02-05-2007 02:23 PM
just an aside re steroids and CRPS-1 fmichael Reflex Sympathetic Dystrophy (RSD and CRPS) 1 12-26-2006 07:52 AM


All times are GMT -5. The time now is 02:25 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.