NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - pain pump (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/13638-pain-pump.html)

Quote:

Originally Posted by ERM942 (Post 77948)

I have morphine in mine right now. I went to the Dr. today and they explained that it could be months until I am at the exact dose that I need, and they may end up changing the medicine used. So like other posters have said- it's an ongoing assessment based on the individual. All I know is that I would have never been able to sit here comfortably on the computer without a large amount of narcotics so this thing must be working! I am not pain free yet but hopefully I'll get there with time. :)

Good luck!

I agree ERM,
I am completely at peace with my decision 7 years ago to have my pump inserted.
I was taking hundreds of mgs of oral and IM Morphine per day at the time and now have reduced to 9 mgs intrathecally.
I have never been without pain even since the pump but it is reduced and allowed my quality of life to improve.
Tayla:hug:

That is so nice to hear during my recovery :) My family and friends keep assessing me every day- how do you feel? Do you feel it was worth it? My mom even caught on with the 1-10 scale :D I think after watching me fail so many surgeries and procedures it's a miracle that [I]something[I] is actually going to work!

I'm so glad to hear that your pump has helped you so much and I appreciate the encouragement. Thanks!

AJ had the trial pain pump put in yesterday, and is feeling
pretty sore. They've cut her oral meds in half, and her legs
hurt more than before the pump. We're hopeful though,
because she's not in withdrawal yet, and she's not in so much
pain she can't talk, so the pump must be doing something.
How long does it take for withdrawal to hit anyway? She
usually takes oxycontin every 4 hours, and so she's had
only half doses for the past 4 doses.

AJ's mom