[used to be]

Just wanted to take a moment to thank all who post here. I have been visiting this site for a few months now and for the first time since I was diagnosed 14 months ago I don't feel so alone in living with this. Like so many here I was let down by our medical system. I have dealt with doctors who were arrogant. rude, condescending, incompetent and heartless. At times I don't know which is worse, the rsd or the doctors. Fourteen months ago I was told I had a "mild" case of rsd that needed no treatment. After seeing 8 mds. 3 physical therapists,1 chiropractor and 2 pain clinics I have lost the use of my entire left leg. I can walk short distances with a leg brace and cane ,otherwise I use a scooter or wheelchair. What I find especially appalling about this whole situation is that I am a registered nurse who always thought that the medical profession would be as kind to me as I had been to it.....boy,was I wrong.!!!!!: I have so many questions but I don't want to trouble anyone right now.But, thanks to all who read my story.

[Chemar]

welcome to NeuroTalk used to be

you seem to have been through a really rough time with health and healthcare

I know the members of our RSD Forum will soon have you feeling part of the community.
I am glad you found us and very glad you decided to post

Cheri

Hi Their,

It's nice to meet you. I am so sorry you have RSD, but glad you found us. I have had RSD for 5 years now, it's the pitts.

We have several RN's on this site. Everyone here is kind and very supportive of each other. Welcome aboard. Love, Roz

[Diamond Lil]

Hello Used To Be: Welcome to our board. So sorry it is because of RSD, but you will find support here. It is OK just to post when you are feeling bad and need to let your stress out. We will listen no matter what. Regards, Lil

[Brokenwings]

Hi and welcome to the Forums, Used to Be! I, too, am sorry you have RSD, and have limited use of your leg.

I am a new here too, but I know you will find much support from all the posters here. They have a wealth of information, and are so willing to share what they have learned with all!

Thank you for posting your story, Used to Be, and may you not feel so alone anymore!!

Brokenwings

[allentgamer]

Then dont do that! LOL Thats about the way the doctors have handled me.

Welcome to the best RSD family I know of

Sorry to hear your having such problems. Dont you wish they could take us serious for once?? Ya know my right leg is getting like your left leg. I was just commenting to my family that it is almost impossible for me to walk. The bad thing is I hate to admit it. It is like signaling defeat. Goin on 7 years with the infernal RSD.

When you said you thought you would get treated the way you treated them, it made me think how probably most of us put so much care and emotion into our work. Some of us get to find out just how uncaring most everyone is. They didnt even appreciate all you did, when you were doing it for caring reasons.

Just remember it isnt the people we are trying to please anyways, it is our creator. He is well pleased when people care for others, that is when we resemble him

Sooo glad you found us!

[Rainbow422]

HHHHHHHHHHHUUUUUUUUGGGGGGGGGGSSSSSSSS!


Now that you are here, you are not alone

Welcome to the group!

Rain

[frogga]

Welcome!!

Shame you have to be here (and that we have to be here!)

Hugs

Frogga xxxxxxxxx

[bassman]

Used To Be: I, too, just recently discovered this forum. I have had the dreaded RSD (also a "mild" case) for over 20 years. I have not found any face-to-face support groups in my area, so this is a very welcome outlet. Even just reading without having to post can be a comfort. I will add my thanks to all as well.

Bassman

[moonstar]

welcome used to be...you are not alone...been with rsd for 13 yrs..march 28 will be my 14th anniversary...you will find allot of supporting and caring people here...wishing you lots of strength..moonstar