Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-31-2010, 08:27 AM #11
shapeshifter224 shapeshifter224 is offline
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Originally Posted by DebraKosbar View Post
HEY HEY go to C.N.N news on R.S.D pretty cool news on it...... If I could do that I would...... in a minute... The pain, it 'makes you crazy, I hate it. So not to have that pain would not be normal for me..........
What's the link or title of article? I cant find it.
Thanks
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Old 10-31-2010, 09:18 AM #12
DebraKosbar DebraKosbar is offline
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What's the link or title of article? I cant find it.
Thanks
Just go to cnn and hit videos............
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Old 10-31-2010, 01:38 PM #13
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Originally Posted by DebraKosbar View Post
Just go to cnn and hit videos............
Dont see any video titled RSD. Is it under some other title?
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Old 10-31-2010, 04:32 PM #14
DebraKosbar DebraKosbar is offline
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Dont see any video titled RSD. Is it under some other title?
Google rsd...
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Old 10-31-2010, 04:34 PM #15
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Google----CNN and RSD. The links for the video will show up first.
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Old 10-31-2010, 09:45 PM #16
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I had knee surgery on my "good" knee which I messed up compensating for the bad one. RSD started for me with a knee injury and DVT. I went into remission after about 9 years of living with rsd. When I had the knee surgery I was in remission and while my ortho was aware of the rsd, being he was one of the first to dx me almost 20 years ago he wasn't really sure how to proceed with PM after surgery to prevent the rsd from coming back. I was given additional pain meds during and after surgery and while I had a flare of the rsd it calmed down quickly and did not come back full force. To prevent this I started moving almost immediatley after surgery and went to pt to help. It worked and the rsd calmed down after about 4 weeks post op and I was able to resume my life. I made it through surgery without the rsd coming back, but having dvt again several years later brought the rsd out of remission and this time it is worse and shows no sign of going back into remission. I am debating the same thing with knee surgery now, I have reinjured my knee and torn the meniscus not sure if I should proceed with surgery but the pain is bad and getting around is hard and I keep wondering at this point with the rsd back will it get worse, and if so what is worse? Initially the rsd was in my right leg, when it came out of remission it now effects both legs, feet, hips, spine and right hand. It's hard to know what is the best thing to do. Good luck with your decision and please keep us posted as to what you decide.

take care,
Sheri
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Old 11-01-2010, 02:59 PM #17
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Originally Posted by sherimac View Post
I had knee surgery on my "good" knee which I messed up compensating for the bad one. RSD started for me with a knee injury and DVT. I went into remission after about 9 years of living with rsd. When I had the knee surgery I was in remission and while my ortho was aware of the rsd, being he was one of the first to dx me almost 20 years ago he wasn't really sure how to proceed with PM after surgery to prevent the rsd from coming back. I was given additional pain meds during and after surgery and while I had a flare of the rsd it calmed down quickly and did not come back full force. To prevent this I started moving almost immediatley after surgery and went to pt to help. It worked and the rsd calmed down after about 4 weeks post op and I was able to resume my life. I made it through surgery without the rsd coming back, but having dvt again several years later brought the rsd out of remission and this time it is worse and shows no sign of going back into remission. I am debating the same thing with knee surgery now, I have reinjured my knee and torn the meniscus not sure if I should proceed with surgery but the pain is bad and getting around is hard and I keep wondering at this point with the rsd back will it get worse, and if so what is worse? Initially the rsd was in my right leg, when it came out of remission it now effects both legs, feet, hips, spine and right hand. It's hard to know what is the best thing to do. Good luck with your decision and please keep us posted as to what you decide.

take care,
Sheri
Thanks Sheri I will keep you posted.... I'm sorry that rsd came back see that it what I'm scared of..... Don't really need any more pain can't take any more pain....... still un sure... I have my ten's today first time with it do you know anything about it? please letme know thanks... I hope you feel better...
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Old 11-01-2010, 03:57 PM #18
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Originally Posted by DebraKosbar View Post
Thanks Sheri I will keep you posted.... I'm sorry that rsd came back see that it what I'm scared of..... Don't really need any more pain can't take any more pain....... still un sure... I have my ten's today first time with it do you know anything about it? please letme know thanks... I hope you feel better...
The knee surgery didn't bring the rsd back. It was 3 years after the surgery that the rsd came back. I tried a TENS unit a long time ago in pt and couldn't tolerate it, it set me off. The pain and burning increased even on the lowest settings. Some people have found it helpful though as you know what works for one may not work for the next when dealing with this crazy thing called rsd!
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Old 11-01-2010, 04:30 PM #19
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Hugs Debra!

I am new to being diagnosed with RSD ...lived with it 5 years caused by gallbladder surgery and have known i had it for 4 months...SO with all that in mind, i dont know much BUT could it help you to get a Ketamine infusion before you have the knee surgery? Maybe it could stop the affect of RSD spreading in your knee. Just a hope and a thought.
Hugs
Lori

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Originally Posted by DebraKosbar View Post
Well hello everyone, well just got back from my knee surgeon and found out I have a torn meniscus, well do I dare have this my doctor really don't want to but I'm in alot of pain..... The last knee surgery created the R.S.D I'm pretty scared can anyone help or have any info for me........ Thanks
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Wishing you a day of pain free movement that turns into forever!
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Old 11-02-2010, 05:38 AM #20
DebraKosbar DebraKosbar is offline
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Originally Posted by lorigood243 View Post
Hugs Debra!

I am new to being diagnosed with RSD ...lived with it 5 years caused by gallbladder surgery and have known i had it for 4 months...SO with all that in mind, i dont know much BUT could it help you to get a Ketamine infusion before you have the knee surgery? Maybe it could stop the affect of RSD spreading in your knee. Just a hope and a thought.
Hugs
Lori
never had a ketamine infusion what is it?
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