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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-18-2007, 06:53 PM | #1 | |||
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Wow!!!! Seems there are quite a few new folks here. In just a short time we have grown BIGGY! I hope to get to chat with all of you but in the meantime I just want to say hello! I'm Mark and I have been around the barnyard for quite a long time. Have been in hiding for a bit due to incresed pain levels which everyone can relate to and had to change my screen name, But if I can ever offer a helping limb thats of any use, please let me know!!
I feel so warm when I post and chat with you all. I see so many friends on here. I cannot explain how comforting it is to see my dear dear friends like Artist, Buckwheat, DiamondLil, Allen, Condor, Debbi3674, Jose, Frogga, Claudia, Linda, Ada, Janet C, Curious, and everyone!!! If I left you off please do not think you are any less important. My arms are around you to. My Doc just recently put me on Cymbalta and I think it is wasting my time. I can't seem to get it through her head that I'm a Big Boy now and I need the grown up stuff. No more candy. I finally weened off of Vicodin (thank God) and am working on getting off of Oxy. Neither do the trick anymore. Been on both for three years. One of my Docs wants to put in a Morphine Pump. I still have a broken Stimluator Implant in me. Hell - one at a time please. The next thing you know if I sit to close to a floor heater - I'LL MELT! Well "One Day At A Time" that's all I can ask for at this point. Well enough rambling. I hope I can chat again real soon. Everyone needs to take extra pain meds cause I don't believe in no wimpy gentle hugs. Big Ole Bear Hugs for everyone!!!!!!. Chin Up!!! Mark
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MARKY MARK THE MAN FROM MAINE...GOT RSD AND LOST HIS BRAIN!!!. AND NOW HE HAS TO USE A CAIN!!!
. Last edited by WickedGood; 02-19-2007 at 10:11 AM. |
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02-18-2007, 07:19 PM | #2 | |||
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LOL mark you can still make me laugh!
I worry about the melting thing too... but more to my inability to detect hot or cold... hope they sort out the pump - i wish that my drs would even consider ops. have you considered prialt? much love FRxxxxxxxxxxxxxxx PS don't know if you are up for listening to stuff at the moment - but this radio show is giving me something to giggle about.!!!!! http://www.thislife.org/ ... my favourite link is DEFINETLY this one though.... http://www.thislife.org/pages/descriptions/07/325.html (Houses of ill repute!).. PPS - is the PD a replacement of the MS or a new thing? I know the initial sx in both are similar..
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It's always darkest just before dawn... but smile and the world smiles with you, cry and you cry alone |
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02-18-2007, 07:35 PM | #3 | |||
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Magnate
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I was just wondering if these things they are putting in you are made out of metal or plastic. If they are metal or have metal in them you might not want to go to a junkyard where they have those big magnets that pick up cars. Wouldn't want you to be made into a pancake. LOL
I hope you do get to stick around but I do know how that pain is. I have raised my meds lately and they are still not doing the job. Next month I will have an implant put in me too. At least it might be a way of identifying my body if I ever kick the bucket or get lost. Your right about those hugs, it does take extra meds to be able to give good ones. I don't think that there's enough meds out there though to make those hugs any easier but I still give them. Ada |
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02-18-2007, 10:55 PM | #4 | |||
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Great sites. Ada the implant is mostly metal with some plastic. You are right about the magnets. The biggest obstacle is going through metal detectors. I recently had to go through one at a court house. I have to be checked manually with a wand. They have to be real careful with it or they can shock you really bad. Well wouldn't you know it. ZAP! I got nailed. The Officer forgot to turn down the sensitivity of the wand and talk about hurt. I felt like I was sticking a fork into a electrical outlet. I did calm down but it took about a half hour.
Anyway, it just something you have to learn to live with. Thanks again Frogga. I appreciate the sites. Chin Up!!! Mark
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MARKY MARK THE MAN FROM MAINE...GOT RSD AND LOST HIS BRAIN!!!. AND NOW HE HAS TO USE A CAIN!!!
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02-19-2007, 08:57 AM | #5 | ||
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Hi there. Nice to "meet" you... looking foward to reading more of your posts later on.
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02-19-2007, 10:36 AM | #6 | ||
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Yappiest Elder Member
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welcome home mark. we sure have missed you. i hope that pain monster keeps a low profile. oh...here is your bear hug from me. Attachment 852
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. Last edited by Curious; 08-29-2007 at 04:28 PM. |
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02-19-2007, 10:57 AM | #7 | |||
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Mark, were you ATallOne before???? I remember the "Face" and the "Chin Up!" LOL! I belive you were our bus driver as well???? LOL! You will have to make a point of posting every day, cuz if I recall, you always had a way with words and could always bring a smile to our faces, even on the gloomiest of days.
Wecome back sir. Nice to see you again!
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Hugs, LisaM ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~ Visit My Message Board - Helping Custodial Parents Collect Child Support From Deadbeats for 7 Years . ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~ right Side TOS Decompression Surgery 12/2005 RSD Exacerbated after surgery Still have TOS on left side RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist |
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