Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-12-2010, 10:09 PM #1
kathy d kathy d is offline
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Hi Gabbycakes,
I am so happy you are doing better and the shot worked well. That burning pain can drive you bonkers for sure. It is soooo relentless. I am getting somewhat used to the heavy burning pain in my chest/abdomen now as I was told it is in my skeletal system. Yeah for me huh haha. Glad to hear you are doing better. Keep up the great work.
take care,
kathy d
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gabbycakes (11-13-2010)
Old 11-13-2010, 06:10 AM #2
gabbycakes gabbycakes is offline
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Originally Posted by kathy d View Post
Hi Gabbycakes,
I am so happy you are doing better and the shot worked well. That burning pain can drive you bonkers for sure. It is soooo relentless. I am getting somewhat used to the heavy burning pain in my chest/abdomen now as I was told it is in my skeletal system. Yeah for me huh haha. Glad to hear you are doing better. Keep up the great work.
take care,
kathy d
Hi kath,

I am doing better even more so since it's been a few days. He did say by Friday you should feel the full effects. I'm still favoring the right arm(RSD arm) which is really not what I should be doing. But today I'm going to try and use and left normally. I just hope that pain doesn't come back.

Thanks for all the support.

gabbycakes
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Old 11-13-2010, 10:14 AM #3
daniella daniella is offline
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Glad you are doing better. I can relate to the relying on other body parts to protect the worst of the rsd area. I know I have created problems in others areas due to that. On my better days though I try to slowly be more even so to speak with how I move my body. I hope you continue to get relief
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Reddawn600 (08-08-2011)
Old 11-13-2010, 10:27 AM #4
janejane janejane is offline
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Hi Gabby! Have you tried vitamin c infusions? I had an ankle injury 8 months ago and my rsd started to spead to my ankle. It was bad. Then I had a set of vitamin c infusions and the ankle got a lot better. Alternative medicine centers have those kinds of infusions sometimes. There was a study that actually showed that giving large doses of vit c to patients after injuries, seriously lowered the likeability to develop rsd. So don't dismiss them as there are scientific studies backing them.Vit c works by activating circulation. I would give them a try.
Good luck and best wishes! Big hug!
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Old 11-13-2010, 03:42 PM #5
gabbycakes gabbycakes is offline
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Originally Posted by janejane View Post
Hi Gabby! Have you tried vitamin c infusions? I had an ankle injury 8 months ago and my rsd started to spead to my ankle. It was bad. Then I had a set of vitamin c infusions and the ankle got a lot better. Alternative medicine centers have those kinds of infusions sometimes. There was a study that actually showed that giving large doses of vit c to patients after injuries, seriously lowered the likeability to develop rsd. So don't dismiss them as there are scientific studies backing them.Vit c works by activating circulation. I would give them a try.
Good luck and best wishes! Big hug!
janejane,

Someone else just said the same thing on this fourm, I think it was kathy d. I have to check all that out. When you say Alternative Medicine Centers what do you mean? I have never heard of that. I live in NJ about a 1 or 2 or 3, demending on traffic, for NYC. If you have any recommendations I would appreciate it. I would love to go all natural if I could. So I would definitly be interested. Does insurance cover it?

Thanks for the info.

gabbycakes
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Old 08-07-2011, 09:31 PM #6
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Hi! So sorry for the delay in replying. I didn't forget about you, but I had an awful bunch of problems and have been so overwhelmed.

Did you find where to get the vitaminc c infusions? I don't know if there are places in NY where one could get that done. I only know tye ones in the Boston area. Insirance doesn't cover them but for me they work so great! I wish you could try them. I am going to call the doctor who prescribes them here and will ask him if he knows where to get them in NJ or NY.

How are you lately? Hope that much better!
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Old 08-08-2011, 03:04 AM #7
gabbycakes gabbycakes is offline
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Quote:
Originally Posted by janejane View Post
Hi! So sorry for the delay in replying. I didn't forget about you, but I had an awful bunch of problems and have been so overwhelmed.

Did you find where to get the vitaminc c infusions? I don't know if there are places in NY where one could get that done. I only know tye ones in the Boston area. Insirance doesn't cover them but for me they work so great! I wish you could try them. I am going to call the doctor who prescribes them here and will ask him if he knows where to get them in NJ or NY.

How are you lately? Hope that much better!

Hi janejane,

Sorry to here you had some problems going. I hope they have resolved themselves for the positive.

The headaches I spoke about months ago was corrected by the proper glasses. So now I don't get headaches any more outside of the usually.

I've had a rough summer. Humidity is the worst for me. So honestly I don't go out unless I'm in my office,which is freezing, in my house or by water between the hours of 11-5. I just can't handle the heat. And I have had some RSD return like running water down by arm, the little bug feelings I used to get and even on my opposite side which has not happened in 3 years. So I am a little concerned just waiting for the heat to end and hopefully the feelings will stop. I have had some increase pain but not serious. Not going to panic yet.

Thanks for getting back to me. Your very kind.

Gabbycakes
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