Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-16-2010, 04:05 PM #1
lorigood243 lorigood243 is offline
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I have internal RSD but was wondering if many of you have similar problems. I have read where many have constipation which could be from pain meds....how do you know if you are having serious kidney issues or just another part of RSD.

I take Oxybutinin for frequent urination problems but i dont think its working that great. I have to urinate every 2 hours sometimes every hour and usually have diarrhea and take OTC meds to help that and it does a little not alot.

Are these problems the same for many of you as well? is there anything better i can be doing to be more comfortable?
I know gross subject, thank goodness we are all buddies here!
Lori
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Old 11-16-2010, 09:04 PM #2
Lisa in Ohio Lisa in Ohio is offline
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Lisa in Ohio Lisa in Ohio is offline
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Hi Lori, Some of the meds I take cause me to be extremely thirsty all of the time. Sadly, input leads to output. I just recently had my kidney levels checked because I had noticed a change with urination and every thing came back fine. That said, I had to make a trip to the doc today for a UTI that had gotten pretty bad. My doc thought that many of the symptoms of the UTI had been masked by my other medications. I don't really have any answers for you, maybe just some hints. Lisa
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Old 11-17-2010, 08:07 AM #3
lorigood243 lorigood243 is offline
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thank you Lisa. i was checked about 6 months ago before i had the rsd diagnosis and they couldnt find a reason. you would think with so many of us battling this that it wouldnt be such a mystery. yesterday my left foot was swollen fell asleep feeling real uncomfortable and after about 8 hours went back to normal. its hard to know what is an rsd symptom and what isnt.





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Originally Posted by Lisa in Ohio View Post
Hi Lori, Some of the meds I take cause me to be extremely thirsty all of the time. Sadly, input leads to output. I just recently had my kidney levels checked because I had noticed a change with urination and every thing came back fine. That said, I had to make a trip to the doc today for a UTI that had gotten pretty bad. My doc thought that many of the symptoms of the UTI had been masked by my other medications. I don't really have any answers for you, maybe just some hints. Lisa
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Old 11-17-2010, 08:42 AM #4
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dreambeliever128 dreambeliever128 is offline
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Default Hi Lori,

Have you seen a Urologist. It's a subject I have discussed so many times on here and with my PCP. If I pee 1 time a night or day, I go 20. I do have Interstital Cystitis and had a small uretha and they had to stretch it so I would empty out. I don't drink water very often due to having to go twice as much. I drink some coffee, not much and drink milk. I stay away from pop due to causing more problems.

I deal with major constipation also and have been put on meds for that. The Amitiza seems to help that. It is specifically for constipation, I believe only been out a couple of years. All of the other stuff I tried did nothing for me. None of the fiber stuff worked, prescription or not.

I will say too, I saw 4 Urologist before I got my diagnoses and treatment. I do believe a second opinion is important at times.

Ada
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Old 11-17-2010, 10:30 AM #5
lorigood243 lorigood243 is offline
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i did see the urologist about 6 months ago but not since i have had the RSD diagnosis. 8 months ago i had ultrasounds done and a full work up, nothing abnormal, but no answer for whats wrong in me.
thank you for your suggestions. i know im preaching to the choir...but i am SO tireder of going to doctors!
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