Three full days now and she is VERY groggy but still not sleeping well. A little bit of anxiety about it not working and the doctor is going to give her some xanax. I told her to ask for something to help her sleep. Still praying for positive results. She achieved some pain relief with low dose infusions so hopefully this will have even better results.

my boyfriend is doing the ketamine treatments here in atlanta as an outpatient at the shepard center.. The way they are doing his is once a week for three weeks. He has already done two weeks and has felt not an ounce of relief or anything really from it other than tasting saline in his mouth all day every day..
Has anyone else heard of this once a week for 3 week ketamine infusion? He has a very bad case of RSD and I just don't understand why they are not doing a 3 or 5 day outpatient with him

Dear Tiffany -

Sorry, I hadn't seen this when I asked in the other thread the specific nature of the ketamine treatment he had gone through. I didn't realize that his treatment was still ongoing.

And no, it doesn't sound like any protocol I've ever heard of.

Mike

Hi All,

I don't want to bore all with my long story once again. But have done the 5day inpatient ketamine infusion with boosters 3x 's. And all the responses I have read are they same type of effects I also had. I did have a good experience and did get relieve from most of the RSD symtoms. As everyone has stated everyone is different and it effects all differently.

I do want to share one interesting thing. I posted 2 weeks ago I had got pneumonia and was treated with Prednisone and a antibiotic. Roll back 7 years and one of the meds. they gave me when I was first injuired was prednisone and it was the only medication I have taken that took all the inflamation and pain out of my arm. While I was on the prednisone for the 6 day taper while I had the pneumonia I had a 0 pain level, interesting. So yesterday I had my regular PM appt. and discussed it with him. He said that is intersting prednisone should not help with RSD. Tell me something I don't know....My point, I have been asking and questioning almost begging my doctors to do more investigating in regards to the pain in my arm. The reasons I have gotten not to do anymore is "the arm has been through so much, to many surgeries, your on very little pain meds. you got great functioning back", blah, blah.. But I feel if I can get rid of this pain, my RSD symtoms are low, yes I do have flares but I can see myself getting off all meds. which is important to me. So I finally got someone thinking again and maybe I will get the correct answers. Don't get me wrong I love my doctors but this is one point I just don't agree and it's very hard to find good qualified doctors who know RSD and can deal with everything else.

Good Luck to all

Gabbycakes