Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-04-2011, 10:41 PM #11
lillizziem lillizziem is offline
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ok, so I have had the root canal. All went pretty well. The first few days I actually had no increased pain. However, around the fourth day, I felt like I got hit in the head with a baseball bat. The pain in my foot increased a little, but it was far better than the last time. I still have my tooth extraction later this week so I am keeping my fingers crossed.
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Old 01-05-2011, 04:22 AM #12
gabbycakes gabbycakes is offline
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Quote:
Originally Posted by lillizziem View Post
I went to the dentist today and was told not only do I need a root canal, I also need to have one tooth pulled (the root canal would be too difficult, and it would only save the tooth for a few years). I have had RSD in my right foot for two years now.

I went to the dentist for a simple filling replacement about six months ago. It was pure agony. My face swole up, and my pain skyrocketed for about two weeks. I do not think it is safe to have either the root canal or extraction, but I have to don something at this point. I am terrified that the RSD will spread to my face.

On top of that, I have called about a hundred dentist (endodontist, oral surgeons) and NONE of them will take me as a patient. I need to do something. Please help.
Hi Lillizziem,

I have had a similar situation with my dentist. He has treated my whole family including my mom for years. But when I got hurt my PM doctor wanted to speak with him prior to any treatment outside of a cleaning. I have had good teeth all my life except for trouble with dry mouth for morphine sulfate based medications i.e. Avinza, Opana, Kadian etc. I was taking Avinza for a short period. So anyway my dentist I quess resented another doctor telling him how to treat me if I need a filling and how much to numb me so I don't get a flare. Anyway as it turned out I did need dental work from the decay that was caused my the dry mouth, I know it's hard to believe but it happens. I had to stop the avinza. I did need 2 teeth pulled and a small bridge. My PM doctor suggested I go to a teaching hospital with a dental school program. I said what, he explained. These dental schools have separate departments that care for people who have other medical issues. So now I'm with a great school, when I have my appts. a pain doctor on there staff is there, knows about RSD, gives the orders for how much novacaine and such speaks with my PM if he has to. I have had the work I mentioned above and really I don't think it was that bad. I did get a slight flare on the right side of my face and a slight headache but that was really it. I think the flare came more from the shot's of novacaine then the dental work.

I also have to agree with Bryanna,I think that was here name, she commented about "dry sockets'. She is absolutly right. When I was younger in my 20's I had 2 of my wisdom teeth pulled on 2 separate occassions and both times I got a dry socket. It was the most painfull experience of my life and having RSD, 7 surgeries I have had pain. So stay away from that.

Gabbycakes
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Old 01-05-2011, 10:43 PM #13
lillizziem lillizziem is offline
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so a quick update. I had the root canal, and it was alright. the first few days, nothing abnormal. however on the fourth day, it felt like someone hit me with a baseball bat. It was seriously inflammed. The pain in my foot was worse too. About a week later, I started having leg cramps, that lasted for a couple of days. As of now, it still hurts, but it is getting better. I have to have a tooth extracted on Friday. It is a wisdom tooth that should have been removed 16 years ago, but the one i did have removed didn't go so well (the oral surgeon had to break my jaw to get it out). But it is in sideways, infected and the roots have spiraled around my jaw.

I am hoping all goes well. At least the root canal wasn't too bad.
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