Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-28-2010, 01:48 AM #1
rsdwife rsdwife is offline
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Default Its been quite awhile but wanted to update...

I haven't checked in with you all since the end of January. Its been a crazy 10 months, but the bright side is we have landed on our feet. It was a long battle with w/c. However, in August, the judge ruled in our favor, forcing w/c company to accept rsd as an accepted condition resulting from his on the job injury. The scs has been successful for him (we had to do this thru private insurance that we had thru paying the high cobra payments, since w/c denied it was related). The SCS does not eliminate all pain, but has allowed him, with quite a fight, to get back in his truck and drive and to be drug free. He recently was able to go back to work, 2.5 years after his accident. We have lost our house, and one of our vehicles, while fighting w/c and getting my husband the treatment he needed, however we (my husband, myself 4 kids and the basset hound are happy to be standing on our feet. Makes you realize what truly is important in life. The best to you all... RSDWIFE
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Imahotep (12-01-2010)

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Old 11-28-2010, 03:32 AM #2
finz finz is offline
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What an awful struggle !

I am glad that you have something to be thankful for this holiday season.
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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rsdwife (11-28-2010)
Old 11-28-2010, 06:19 AM #3
daniella daniella is offline
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Hi. I am sorry for all your struggles. I hope 2011 brings easier times. You have a good outlook and I think that helps.
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rsdwife (11-28-2010)
Old 11-28-2010, 07:07 AM #4
gabbycakes gabbycakes is offline
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Quote:
Originally Posted by rsdwife View Post
I haven't checked in with you all since the end of January. Its been a crazy 10 months, but the bright side is we have landed on our feet. It was a long battle with w/c. However, in August, the judge ruled in our favor, forcing w/c company to accept rsd as an accepted condition resulting from his on the job injury. The scs has been successful for him (we had to do this thru private insurance that we had thru paying the high cobra payments, since w/c denied it was related). The SCS does not eliminate all pain, but has allowed him, with quite a fight, to get back in his truck and drive and to be drug free. He recently was able to go back to work, 2.5 years after his accident. We have lost our house, and one of our vehicles, while fighting w/c and getting my husband the treatment he needed, however we (my husband, myself 4 kids and the basset hound are happy to be standing on our feet. Makes you realize what truly is important in life. The best to you all... RSDWIFE
Hi RSDWIFE,

Congrats. on coming out the other end happy thats all that matters. You and your family are a inspiration to us all. Hope it continues upward.

Gabbycakes
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rsdwife (11-28-2010)
Old 11-28-2010, 09:41 AM #5
SandyRI SandyRI is offline
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I am really glad that your husband found a treatment that works for him and allowed him to return to work. I truly hope that your family will eventually recoup some of its losses from the time he was unemployed. I'm so sorry for what you all suffered.

WC is just an evil system. I am also a vistim of WC - the Hartford has almost made me totally nuts on a number of occasions. I am back to work after a year's LOA and many different treatments, ketamine was the answer for me. I tried just about everything else, though, first.

You are an inspiration to all of us!! I sincerely hope you have a wonderful holiday season!!

XOXOX Sandy



Quote:
Originally Posted by rsdwife View Post
I haven't checked in with you all since the end of January. Its been a crazy 10 months, but the bright side is we have landed on our feet. It was a long battle with w/c. However, in August, the judge ruled in our favor, forcing w/c company to accept rsd as an accepted condition resulting from his on the job injury. The scs has been successful for him (we had to do this thru private insurance that we had thru paying the high cobra payments, since w/c denied it was related). The SCS does not eliminate all pain, but has allowed him, with quite a fight, to get back in his truck and drive and to be drug free. He recently was able to go back to work, 2.5 years after his accident. We have lost our house, and one of our vehicles, while fighting w/c and getting my husband the treatment he needed, however we (my husband, myself 4 kids and the basset hound are happy to be standing on our feet. Makes you realize what truly is important in life. The best to you all... RSDWIFE
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rsdwife (11-28-2010)
Old 11-29-2010, 09:56 PM #6
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MarriedtoRSD MarriedtoRSD is offline
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Grats! What state is his w/c from? My husbands is through Ohio, we were truck drivers as well and he was injured on the job. They fully accept the rsd is from the injury with no problem, however they want us to go from mid michigan to ohio to get his stimulator implant. Hearing how much it has helped your husband gives us some hope
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Old 12-01-2010, 12:00 AM #7
rsdwife rsdwife is offline
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Default marriedtorsd

We are in Oregon. There is a great sports clinic here, where my husband received his trail and permanent implant. Its amazing that the surgery was at 8 am and he was home by 1:30. I hope your husband has success with it. Has he had the trial yet? My husband is still hurting by the end of the day, but no comparison to not having his scs. He is so grateful to be back in his truck (he's been a mixer driver for 12+ years and can't imagine doing anything else).
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