Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-04-2010, 10:55 AM #1
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DeesRSD DeesRSD is offline
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Join Date: Nov 2010
Location: AZ
Posts: 88
10 yr Member
DeesRSD DeesRSD is offline
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Join Date: Nov 2010
Location: AZ
Posts: 88
10 yr Member
Post Support Groups

Mike and all, after digging through my files, I did find the list that was given to be way back when....I'm not sure if they are all still active or not but a phone call or email will let you know. I have a website somewhere too but I didn't realize how many "favs" I have saved over the years ) but I will keep searching. Hope this is of some help to someone

Northern California RSD Support Group
Meetings will be held in the Park Pavilion at
El Camino Hospital, 2500 Grant Road, Mountain View, CA 94039 Phone 415-940-7188
Contact Larrie Lammer at 2187 Pedro Ave., Milpitas, CA., 95035 or Phone at (408)263-7825
Fax Phone Number: (408)262-8219


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Algonquin, Illinois RSD Support Group
Meeting will be held February 4th, 1998 in the Bethany Lobby at
Saint Margaret Mary Church, Algonquin, IL
Contact Micheline Phone at (847)854-2544


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The RSD Support Group of Northern Arkansas
P.O. Box 153 ---- Midway, Arkansas-72651
Contact Debra Manestar Phone at (870)481-5721


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Sterling, Illinois RSD Care Network of Illinois
Meeting will be held on the first and third Fridays of each month (except Holidays) from 1:00PM to 3:00PM
at the Self Help Enterprise Building, 2300 W. LeFevre Road, Sterling, IL
Chronic Pain patients are welcome
Contact Kathy Hey


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Marion, IN - RSD and Chronic Pain Support Group
Meeting will be held Thursdays at 6:30 PM at
Wesleyan Health Care Center, 729 W. 35th Street, Marion, IN.
Contact Vicki via email or
Phone at (765)662-1710 or (765)677-2995
Your comfort is our priority. Handicapped accessible.
Families are encouraged to participate. Open to all ages.
Topics: information, education, support, coping techniques, treatment issues, medications,
sleep deprivation, stress, family issues, communication with medical practitioners.


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Greensboro, NC RSD Support Group
Meeting are held on the first Monday of each month at The Kaiser Bldg.
at Wesley Long Hospital in Greensboro, NC.
Contact Margie Shelton via email for more info.
Postal Address is Margie Shelton, 3315G Regents Park Lane, Greensboro, NC 27455


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Lakewood California -- RSD Support Group -- "Circle of Hope"
Meetings are held on the 3rd Wednesday of each month at
Lakewood Regional Medical Center located on South and Downey Avenue.
Meeting time is 7 PM - 9 PM.
Contact Person for more information is Susan Marie Anderson --- Phone at (310)833-6945


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Redding California -- RSD Support Group
Meetings are held the 3rd Tuesday of each month at
the Redding Medical Center Conference Room, Downtown Redding Mall
7:00 pm till 9:00 pm
Contact person for more information is Janet Heydenreich --- (No Area Code Given)549-5734


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Illinois -- Provena - Saint Joseph RSD Support Group
Meetings are held on the 2nd Sunday of the month at 1:00pm, in the downstairs classroom
at Provena, St. Joseph Hospital, 77 North Airlite St., Elgin, Illinois.
The contact person is now Diane Thomas at (630) 924 - 5080, call for more information.


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Florida, Port St. Lucie - Tri-County RSD Association
We meet the Second Thursday on each month at 7:00pm at Hope Luthern Church in
Port St. Lucie, Florida. Anyone interested in talking with any one in our group or joining our group, may contact: Wanda Felix @ 561-871-5787, Kelly Smilowitz @ 561-286-4948, or Glenn & Sharon Willis @ 561-335-9528.


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California -- North County RSD Support Group
Meetings are held every other month at the Tri-City Hospital in Oceanside
Contact Person for more information is Carol Harding --- Phone at (760)967-7547


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Illinois -- Loyola RSD Support Group
Our Meetings are the second Sunday of each month --- Time: 2:00PM - 4:00PM
Location: Conference room located next to the cafeteria at the Foster G. McGraw Hospital.
Located on the campus of the Loyola University Medical Center, Maywood, Ill.
Contact: Diana Schmitt (815) 741-9122, Chairperson - Loyola RSD Support Group.
Diane Thomas (630) 924-5080, Newsletter Editor - Loyola RSD Support Group.
Our meetings are open to all.


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Louisville, Kentucky - RSD Support Group
For Sufferers of Reflex Sympathetic Dystrophy, A Chronic Pain Illness, and their families.
Meets the 2nd Thursday of each month at the Urban Government Center
810 Barrette Ave. -- Louisville, Kentucky -- Time 8:00 PM.
Call William or Darlene Nalley at 502-957-3436 for more information.


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Pennsylvania, Pottstown Area --- RSD-Fighting Back & Chronic Pain Support Group,
For Sufferers of Reflex Sympathetic Dystrophy, A Chronic Pain Illness, their Families and Friends.
Meetings are held the second Saturday of each month from 1:30 to 3:30PM, and til 4:30 with a speaker.
at the Pottstown Memorial Medical Center's Pavilion, 1600 East High Street, Pottstown, PA 19464
All are Welcome --- A Nutrition List Will Be Available.
Topics of Discussion and Speakers include ... Pain Specialists, Physical Therapists, Massage Therapists,
Nutritionists, Alternative Methods for Pain Relief.
Call Robyn Spicer at 610-326-8001 for more information.


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Somerville, NJ (Central New Jersey) Area RSD Support Group, For Sufferers of Reflex Sympathetic Dystrophy,
A Chronic Pain Illness, their Families and Friends.
Meetings are held on the first Tuesday of every month at the Somerset Medical Center on Rehill Ave. in Sommerville, NJ
For Further Information contact: Mary Ann Sisco at 732-805-3080
or write to Ms. Mary Ann at 62 East High Street, Sommerville, NJ 08876


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Surrounding Pittsburgh Area RSD Support Group, For Sufferers of Reflex Sympathetic Dystrophy,
A Chronic Pain Illness, their Families and Friends.
A New Group - 3rd Meeting Coming Up - Time: 7:30PM - at the Cranberry Twp Municipal Building
2525 Rochester Road - Cranberry Township, PA 16066
Open to all ages and all family members are encouraged to participate. Our goals are to inform, support, to share coping techniques, treatment issues, medical updates, sleep deprivation, stress, family issues, and communications with medical practitioners. Come share your ideas with us.
For Further Information contact: Paula Jean Colonello at 724-776-0786 or Andrea Puskas at 724-625-8017 or Doreen McSweeney at 724-779-6340


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Houston, PA (Southwestern, PA) Area RSD Support Group, For Sufferers of Reflex Sympathetic Dystrophy,
A Chronic Pain Illness, their Families and Friends.
For Further Information contact: Susan Amos at 724-746-0784
or write to Ms. Susan Amos, P.O. Box 144, Houston PA 15342


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Phoenix, AZ Area RSD Support Group, For Sufferers of Reflex Sympathetic Dystrophy,
A Chronic Pain Illness, their Families and Friends.
For Further Information contact: Leslie Glassmann at 602-247-3746
or write to Ms. Leslie Glassmann, 2926 North 54th Lane, Phoenix, AZ 85031


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The RSD/CRPS Association of North Texas
For Sufferers of Reflex Sympathetic Dystrophy, A Chronic Pain Illness, their Families and Friends.
Meets every Friday from 10:00AM to 11:00AM
at Columbia Hospital, Plano TX. For Further Information contact:
Jo Nell Fulwiler at 972-596-2955, Dr. David Hanks at 972-596-5960,
Lynda El-Mandouh at 972-406-1549
Becki Moore 972-644-5262


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RSD from MARS, PA. with L.U.V. Lending Unity for Victory
Contacts: Andrea Puskas - PO Box 1184 - Mars, PA. 16046 Phone 724-625-8017
Andie@stargate.net - Kenfair@stargate.net
Last Monday of the month at St.Kilians Church, Clark St. Mars, PA - 7:30pm to whenever.
Comments: Open discussions, Spreading awareness, Sharing medical and legal information, Friendship and coping.


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Brockton, MA Area RSD Support Group, Information, News, Guest Speakers for Sufferers of Reflex Sympathetic Dystrophy,
A Chronic Pain Illness, their Families and Friends.
Meets Second Saturday of Each Month at 1:00 PM in the Community Conference Room.
At Good Samaritan Medical Center, Cushing Campus, 235 North Pearl St., Brockton, MA.

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S.C. RSD Association , Greenville, S.C.
RSD Support Group meets the first Thursday of every month at the St. Francis Hospital
Bernardine Center at 6:00 PM in Greenville, South Carolina.
Louise Plaster/Director -- Phone(864) 967-7965


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Lydia, South Carolina, 29079 -- The Greater Pee Dee Regional RSD Association
Contact Eleanor Hawkins, PO Box 58, Lydia, South Carolina, 29079 Phone (843)383-2106
or Mrs. Hailey Craver at (843)498-6193 Email Info
We now have been charted by the state of South Carolina to have a support group.


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NewPort Beach, CA 92660 -- "Fight The Fire!"
Meets the second Wednesday of every month from 6-7:30pm.
400 Newport Center Drive, Suite 410
Newport Beach, CA 92660
Led by Timothy L. Sams, Ph.D. ---- Coordinated by Shari S. Suzuki, Rs.D.
For further information, please feel free to contact Shari S. Suzuki, Rs.D.


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Grand Rapids, Michigan --RSDS Support Group
Meetings are held the 2nd Monday of every month from 7PM - 9PM
at the Kent Community Hospital
6th Floor Meeting Room

Hosted by Sherry and Cliff Mulder

RSDS Support Group of Grand Rapid, MI
1259 Diamond NE
Grand Rapids, MI 49505
616-364-4014


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Pasedena, CA -- Design For Living RSD Support Group

Meetings will be held the 4th Saturday of every month,
except Nov. & Dec. it will be the 3rd Saturday
4:00pm - 5:30pm
Lake Avenue Church, Pasadena, CA
Families & Friends are welcome to attend!
RSVP with Dana via e-mail: designforliving@earthlink.net
or by phone (626) 755-0105
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Talk soon,
Dee
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