Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-22-2007, 09:10 AM #1
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LisaM LisaM is offline
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Join Date: Oct 2006
Posts: 276
15 yr Member
LisaM LisaM is offline
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Join Date: Oct 2006
Posts: 276
15 yr Member
Default At my wit's end....

My next appt with my pain doc is on Monday. Since November, I've been telling them my pain doesn't seem controlled well enough. My hands CRAMP really really bad...to the point where I can't even make a fist now. Heck, I can't even CLOSE THEM all the way at this point. Or, straighten them all the way. They hurt badly if I do. Even slightly bent, or held "normally" they throb and cramp. I can't take this anymore. Nightly, I'm in TEARS over this pain.

They've been blaming it on "the weather." Every time I tell them at my appts that I am not doing well, they say, "Oh, it's this darn weather!" and just write up my prescriptions the same. They have me taking magnesium for the cramping...and it's not working.

How can I get thru to them? HOW????? I'm TIRED of crying. I'm TIRED of them not listening. But the thing is, too, this time the weather was a bit warmer these past couple days, and it's STILL hurting. BUT...there was a new pharmacy that opened in the same building as the pain doc...they were handing out candy at the door, and asking patients to give them a chance, try them out. They were convenient...so I did. Only took 5 minutes, whereas my pharmacy, I'd have to drop the rx's off, and pick up the next day. BUT...when I looked, the percocet were YELLOW, and I always had WHITE ones before. The pharmacist said that it was the same thing, just a different manufacturer. Which, well, could be right....but what if the white ones worked better for me? So now that the weather got a tad better, it could be that the different brand of medication did this! So now th doc is going to blame it on that and make me wait again!

I don't know what to do! Any advice???????
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LisaM

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Visit My Message Board - Helping Custodial Parents Collect Child Support From Deadbeats for 7 Years
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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