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Dextromethorphan working for burning pain

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Old 12-11-2010, 08:58 AM   #1
SandyS
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Default Dextromethorphan working for burning pain

Hi all,

I am going to post again today to update you on the Dextromethorphan, my Lindsay told me last night that is taking away her burning pain...She has not taken an opiad in over a week. I am telling you that I think they may be onto something here. It is compounded at a pharmacy it cost me $48.00 for 480 mls.

She takes 4mls every 8 hours as needed for pain. The bottle is huge. The script is written like this Dextromethorphan 25mg/5ml syrup.

I am only posting again, because I see something working right now. Hope it is good information for some of you. The script does not have the alcohol like the over the counter and is compounded in a stronger dose.

Soft hugs to all,
Sandy
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Old 12-12-2010, 12:05 PM   #2
SandyRI
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I am so happy that you FINALLY found something that works for your daughter!! That's awesome!!

Happy Holidays!! XOXOX Sandy



Quote:
Originally Posted by SandyS View Post
Hi all,

I am going to post again today to update you on the Dextromethorphan, my Lindsay told me last night that is taking away her burning pain...She has not taken an opiad in over a week. I am telling you that I think they may be onto something here. It is compounded at a pharmacy it cost me $48.00 for 480 mls.

She takes 4mls every 8 hours as needed for pain. The bottle is huge. The script is written like this Dextromethorphan 25mg/5ml syrup.

I am only posting again, because I see something working right now. Hope it is good information for some of you. The script does not have the alcohol like the over the counter and is compounded in a stronger dose.

Soft hugs to all,
Sandy
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Old 12-12-2010, 05:36 PM   #3
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WOW...who would have thought that! I'll have to tell my friend Marsha, who has RSD 2..
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Old 12-12-2010, 05:38 PM   #4
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Does it have Codeine in it?
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Old 01-16-2011, 10:16 AM   #5
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Default Dextromethorphan

Sandy,
I'm so glad it was working for her and I hope it still is but I'm confused on the use of it to be honest as I've read mixed things. Most of what I've read is that the benefit is to increase the effectiveness of opiates so you can take less.

I know my fiancee had me taking it before my ketamine infusions when I was on opiates but I haven't since until I thought I saw something on these boards last night, maybe this post.

It's also somewhat confusing because I was taking the OTC robitussun gels in the past but did just read another article saying you needed to have it compounded at a pharmacy but the robitussin gels are only dextromethorphan.

Please don't take this as my questioning the benefit as I do believe there is some, I'm just trying to figure out what exactly it is and what's the best way to achieve it. I do keep seeing reference to it's help in relieving burning pain (which is what I need right now) but then some scientific papers only discuss it as an adjunct to opiates.

How has Lindsay been with it this past month?

Dawn


Quote:
Originally Posted by SandyS View Post
Hi all,

I am going to post again today to update you on the Dextromethorphan, my Lindsay told me last night that is taking away her burning pain...She has not taken an opiad in over a week. I am telling you that I think they may be onto something here. It is compounded at a pharmacy it cost me $48.00 for 480 mls.

She takes 4mls every 8 hours as needed for pain. The bottle is huge. The script is written like this Dextromethorphan 25mg/5ml syrup.

I am only posting again, because I see something working right now. Hope it is good information for some of you. The script does not have the alcohol like the over the counter and is compounded in a stronger dose.

Soft hugs to all,
Sandy
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Old 01-16-2011, 03:22 PM   #6
SandyS
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Hi Dawn,


Lindsay has not taken any opiads since she started the Dextro...It is compounded at a greater strength at the pharmacy. It takes the most of her burning pain away. She is only taking that and cymbalta. There is no codine in it either. There are always mixed messages with medications. But, it is working for my daughter at this point in time and I am very happy. The over the counter has alcohol in it. The compounded one does not. Therefore there is not side effects from it. She does get a little dizzy sometimes after she takes it. Hope this helps.

Quote:
Originally Posted by Reddawn600 View Post
Sandy,
I'm so glad it was working for her and I hope it still is but I'm confused on the use of it to be honest as I've read mixed things. Most of what I've read is that the benefit is to increase the effectiveness of opiates so you can take less.

I know my fiancee had me taking it before my ketamine infusions when I was on opiates but I haven't since until I thought I saw something on these boards last night, maybe this post.

It's also somewhat confusing because I was taking the OTC robitussun gels in the past but did just read another article saying you needed to have it compounded at a pharmacy but the robitussin gels are only dextromethorphan.

Please don't take this as my questioning the benefit as I do believe there is some, I'm just trying to figure out what exactly it is and what's the best way to achieve it. I do keep seeing reference to it's help in relieving burning pain (which is what I need right now) but then some scientific papers only discuss it as an adjunct to opiates.

How has Lindsay been with it this past month?

Dawn
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Old 01-16-2011, 08:29 PM   #7
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Default Side effects?

Hi Sandy,

My Neurologist had me try the over the counter cough syrup with Dextro in it and it made me really nauseous. I was just wondering if your daughter had any similar side effects? I stopped it after 2 days since I could barely eat, but now I'm wondering if I should have stuck it out.
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Old 01-17-2011, 04:16 AM   #8
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Quote:
Originally Posted by SandyS View Post
Hi Dawn,


Lindsay has not taken any opiads since she started the Dextro...It is compounded at a greater strength at the pharmacy. It takes the most of her burning pain away. She is only taking that and cymbalta. There is no codine in it either. There are always mixed messages with medications. But, it is working for my daughter at this point in time and I am very happy. The over the counter has alcohol in it. The compounded one does not. Therefore there is not side effects from it. She does get a little dizzy sometimes after she takes it. Hope this helps.
Hi Sandy,

So happy for Lindsay and you. As I've told you before I have a 16 yr. old and it's a killer when it's your child. I've been there also at one point.
Here's a big hug for Lindsay and you, truly congratulations.

Gabbycakes
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Old 01-17-2011, 04:36 AM   #9
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Quote:
Originally Posted by SandyS View Post
Hi all,

I am going to post again today to update you on the Dextromethorphan, my Lindsay told me last night that is taking away her burning pain...She has not taken an opiad in over a week. I am telling you that I think they may be onto something here. It is compounded at a pharmacy it cost me $48.00 for 480 mls.

She takes 4mls every 8 hours as needed for pain. The bottle is huge. The script is written like this Dextromethorphan 25mg/5ml syrup.

I am only posting again, because I see something working right now. Hope it is good information for some of you. The script does not have the alcohol like the over the counter and is compounded in a stronger dose.

Soft hugs to all,
Sandy
Hi Again,

I had to do some research on my own because I just have never heard and I'm up for anything that will help.

Just two very interesting points in a case study I found. It stated 1-that Dextromethorphan works on the part of the brain that controls coughing and 2-it stimulates the Central Nervous System. The 2nd point it what really surprised be. We all know that RSD is a Central Nervous System Disorder and I always believed and understood that it is over stimulated. But Dextromethorphan stimulates the CNS. Kind of like the way Ritalin, Adderal and the likes work on the part of the brain that controls impulses. Ritalin and those type of meds. are anphetamines to stimulate the part of the brain that is not working for focusing, impulse control etc. It stimulates that part of the brain so persons who have problems with ADD/ADHD can funtion better. So maybe the Dextromethorphan works the same for RSD patients even though they say it stimulates the CNS but maybe it's just correcting/stimulating in turn the RSD symtoms are reduced. Very interesting. I may just go out and buy it, once I ask my doctor, just to try it and see what happens.

Gabbycakes
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Old 01-17-2011, 12:23 PM   #10
Reddawn600
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Sandy,

I'm so happy it's working for your Lindsay. The dextromethorphan I was referring to is not supposed to have any alcohol either so it may be an option if some people want to try it and a bit less expensive, there are also generic tablets but only 10mg. These are 15mg http://www.drugstore.com/qxp85584/ro...obitussin+gels

I'm assuming this is not as potent as what Lindsay is taking but I'm hoping 3 a day will have some benefit anyway.








Quote:
Originally Posted by SandyS View Post
Hi Dawn,


Lindsay has not taken any opiads since she started the Dextro...It is compounded at a greater strength at the pharmacy. It takes the most of her burning pain away. She is only taking that and cymbalta. There is no codine in it either. There are always mixed messages with medications. But, it is working for my daughter at this point in time and I am very happy. The over the counter has alcohol in it. The compounded one does not. Therefore there is not side effects from it. She does get a little dizzy sometimes after she takes it. Hope this helps.
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