Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-13-2010, 01:05 PM #1
lovemydog lovemydog is offline
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Default HBOT Hyperbaric Oxygen Therapy Blog

HI, I am new to the site. I had been diagnosed with RSD since 1996 in both hands and feet, until 2008 (I think) when I went to Cleveland Clinic and I saw two different doctors there. One said I did not have RSD, the other said I had RSD in partial remission. HMMMM....Anyways, I have been using a wheelchair mostly, and crutches fo the last 8 years. There is no free-standing HBOT clinic that permits you (off-label, non FDA or Medicare approved) to receive in my city so I am down here in Playa del Carmen, Mexico doing my HBOT in the same multiplace chamber as divers that have decompression accidents. I could not find much information about HBOT and RSD, just the blog on rsdhope** so I thought I would offer up my experiences in form of a blog at: I will have to tell you after I make a few more posts!


Please let me know of any specific questions you have about the treatment or my experience there. You can also communicate directly with my doctor there. She speaks English and has treated her own RSD with HBOT. I am a little behind in posting. I am starting my 5th treatment today but I hope to be caught up by tomorrow. I hope this can help others considering the treatment, and I hope it works!

Last edited by mrsD; 12-13-2010 at 02:00 PM. Reason: removing link per NT guidelines for new posters- and a small content edit
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Old 12-14-2010, 04:30 PM #2
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Thank you for offering to share your experience with the HBOT treatment. I have been researching the HBOT treatment the last couple of months as all other treatments have failed (ketamine infusions, nerve blocks, and numerous other misc treatments) so I'm really left on my own to figure out the next step. During one of my hospital stays one of the Dr.'s performed an oxygen test and both of my legs (the crps is isolated to both of my legs) had less than 70% oxygen saturation which is really low. I really think oxygen therapy will help but insurance doesn't cover it and I'm not working so I can't afford to spend anymore money on a hunch... Let me know how it works and I wish you nothing but success.
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Old 12-19-2010, 01:15 AM #3
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Quote:
Originally Posted by lovemydog View Post
HI, I am new to the site. I had been diagnosed with RSD since 1996 in both hands and feet, until 2008 (I think) when I went to Cleveland Clinic and I saw two different doctors there. One said I did not have RSD, the other said I had RSD in partial remission. HMMMM....Anyways, I have been using a wheelchair mostly, and crutches fo the last 8 years. There is no free-standing HBOT clinic that permits you (off-label, non FDA or Medicare approved) to receive in my city so I am down here in Playa del Carmen, Mexico doing my HBOT in the same multiplace chamber as divers that have decompression accidents. I could not find much information about HBOT and RSD, just the blog on rsdhope** so I thought I would offer up my experiences in form of a blog at: I will have to tell you after I make a few more posts!


Please let me know of any specific questions you have about the treatment or my experience there. You can also communicate directly with my doctor there. She speaks English and has treated her own RSD with HBOT. I am a little behind in posting. I am starting my 5th treatment today but I hope to be caught up by tomorrow. I hope this can help others considering the treatment, and I hope it works!
I have owned and operated a hyperbaric Oxygen center for over 15 years, during that time I have treated 100s of cases of RSD, in all stages, Please I urge you to wisely consider the science behind HBOT for your RSD. I have a website to help you with Peer reviewed studies about RSD, You may contact me at anytime Susan
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Old 12-19-2010, 03:24 PM #4
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I have RSD in all of my extremities. I tried HBOT for 3 months and unfortunately did not see any results. However, I've heard of other people going into complete remission from HBOT. The good thing is that there are very few side effects from it so if you can find the money to try it at least you won't be risking much. I wish you the best of luck and I hope it works for you!
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Old 01-03-2011, 06:02 PM #5
rachel's daugther rachel's daugther is offline
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Quote:
Originally Posted by hyperbaric1 View Post
I have owned and operated a hyperbaric Oxygen center for over 15 years, during that time I have treated 100s of cases of RSD, in all stages, Please I urge you to wisely consider the science behind HBOT for your RSD. I have a website to help you with Peer reviewed studies about RSD, You may contact me at anytime Susan
Can you please list your web site, I am considering HBOT for my 17 year old who has RSD. I am trying to read as much information as I can.
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Old 01-08-2011, 12:47 AM #6
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Can you please list your web site, I am considering HBOT for my 17 year old who has RSD. I am trying to read as much information as I can.
My Dr. has two clinics in Scottsdale with HBOT. He is a neurologist, internist, pharmacologist, pychiatrist, board certified and also certified in HBOT. The world renouned Barrows neurological institute send their patients to him as well as Veterans Hospital. He has had some outstanding outcomes that have been publized by the local TV channels. He has been my Dr. for 6 years. If you want his name address etc, I'll PM it to you. Your friend, loretta
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