Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-10-2010, 07:09 PM #1
AintSoBad AintSoBad is offline
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Default Layering, for weather.

Most of us go into some sort of shock with the cold weather, and I've spoken about humidity. When the humidity in our homes gets low, as it normally does in winter, our skin is akin to evaporate more, this triggers the inappropriate perspiration, then chills and the pain cycle. We can perspire when we get chilled. Keep your humidity up in the winter, lower in the summer. (Relative humidity should be around 50-55% all the time, with some deviation).

For Layering clothing this is what I suggest.
NO COTTON next to the skin!
Also, don't be afraid to spray on anti perspirant, say like on your feet, I spray it around my neck and behind my ears, too. (I've gotten to the point, that I can do this on a skateboard, making a jump! ;*) I DO like cotton sock, only if I spray my feet with A-P.

Back to the layering, I highly suggest Patagonia's Capilene.
It's super-wicking, and won't get soggy like cotton does.
They make Capilene T shirts, Zip Tees, long johns, underwear, for men and women, socks!
It's not inexpensive, but, rest assured, it lasts many years! And, has a great guarantee! This is a great company to deal with, too.

Go to
www.patagonia.com

sign up for their mailing list (sales)
Get their catalogue too.
You can shop online, but to start, a catalogue is great!

Check out their entire Capilene line, which not only covers the gamut of garments, (Hah), but comes in I think Four different weights, silkweight, (which is very nice on the skin) to medium, heavy and extra heavy.
You can lawyer socks, and I ALWAYS have a capilene t shirt on.
Even in the summer.
Nice colors, good service.
You can't go wrong.
I've been wearing this for skiing, before I got RSD.

They make a wonderful line of jackets, and clothes for kids, all great quality.

Check it out.

Pete
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Old 12-10-2010, 08:09 PM #2
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Thanks a bunch for the continued advice. I have worked outside for 23 years so layering is second nature to me. But maybe you could help me understand the correlation between the sweating and RSD.

I don't sweat. It is an issue. I have to constantly spritz myself with water in the summer or I overheat. Now, I do sweat in extreme heat in my crevices and folds(too much info, I know), but to cool myself it doesn't happen. My issue is cold. My average temp is 97.4. The other night it was 96.2. I have difficulty getting warm, to say the least. I always have 3 times as many clothes on as anyone else. During menopause, I had severe waves of cold instead of hot flashes. I had a few of the hot flashes, I thought they were pretty cool.

ok, I hate shoes, I hate socks, I hate most anything that presses on my foot/feet. I have size 8 boots(2 sizes bigger than normal) to wear when I go out with layered socks. Three pair is too many, too much pressure. I don't go out to walk, just for transport to another location. Why don't you want cotton against your skin? Causes you to sweat? I feel like the cotton socks irritate my skin. I'm trying to work this out. Staying home seems the best option. I stay in the car most of the time anyway. I have trouble with nylon too because it moves around too much, or maybe I do.

I'm developing a slipper fetish. I have yet to try crocks, I don't go out to try any. Someone said I might like them.

Thanks again for all your info. I'm gonna go check out the patagonia site. Then I'm due for a soak.

have a peaceful evening,
pat

Last edited by gramE; 12-10-2010 at 08:13 PM. Reason: I hit the wrong button
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Old 12-11-2010, 12:37 PM #3
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Thanks Pat,
I suppose I'm addressing most of us who have inappropriate perspiration, often triggered by the cold. You get cold, ya sweat, ya get a chill, and it all starts over, and drives the pain. I don't have much experience with lack of perspiration.
Heat went off in my apt. last nite, woke up around 4AM, it was 55 in here. Called, got a call back @ 9AM. Still no service, so I had to turn on the gas burner for a while, (VERY Carefully). just a side story, but, as soon as I had a cup of warm tea, I was soaking wet with perspiration, while it's still cold in here.

Back to the Patagonia Capilene, the silkweight might be very comfy for you...

Be Well,

Pete
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Old 12-12-2010, 04:52 AM #4
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All this talk about layering.....I feel another hot flash coming on !
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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Old 12-12-2010, 01:45 PM #5
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Quote:
Originally Posted by finz View Post
All this talk about layering.....I feel another hot flash coming on !
Take a layer off, have a 'boat drink', and cool down!
Or, shoot six holes in your freezer!


pete
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Old 12-12-2010, 07:27 PM #6
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These are great ideas, thank you. I have found that I am now in love with the fuzzy soft socks!!! They are very silky on my feet and are not to tight around my ankles, except when the swelling gets bad. I do usually wear my silky pj pants when at the house. They are the most comfortable on my legs, but when I have to go out, I have found some light weight workout pants that seem to help some. As far as shoes, I can no longer wear tennis shoes or any form fitting tight shoes, nor can I go barefoot. I do wear crocks or crock substitutes EVERYWHERE!!! I have bought them one size to big, that helps especially during the times I start to swell.

Hope this helps, wishing you peace and rest,
Renee'
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Old 12-13-2010, 04:55 AM #7
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Quote:
Originally Posted by AintSoBad View Post
Take a layer off, have a 'boat drink', and cool down!
Or, shoot six holes in your freezer!
pete

lol

Well, I only have one layer on.....but the boat drink and shooting six holes in the freezer sounds good !
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Gee, this looks like a great place to sit and have a picnic with my yummy bone !
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Old 12-14-2010, 10:20 PM #8
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Thank you for this topic! Living where subzero temps are pretty much winter round (it's actually above zero right now even with wind chill though, lol), layering is almost necessary. Trying going out when it's -45 with wind chill and only a pair of jeans....it's not fun! I've spent the last 3 winters only venturing out when necessary since even a pair of sweatpants are torture. I wish it wasn't so expensive though. Living on $600 a month makes it hard to spend $50 on even a pair of shoes.
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Old 12-14-2010, 11:43 PM #9
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now I don't know if you have an Alco store near you, but I just bought a pair of Chill Chasers. They aren't like thermals, they are soft and move gently against my skin. I haven't washed them yet, but they were ten dollars and I had a 30% off coupon which made them 7. As soon as I can go out again I'm hoping to pick up an extra pair. and the nice thing is they had black so it doesn't look so weird if it accidently gets out beneath my britches. I'm even wearing then under my pj pants when I'm really got the chills. I'm wide so I bought extra large, and it is nice because they don't hit my ankles when I walk. I'm not ready to say I love them, but I haven't had them off since I bought them. And they are slick so slacks don't stick to the like the smoother things.
may rest and quiet visit you tonight.
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Old 12-15-2010, 01:06 AM #10
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Watch Patagonia for sales, and 'insist' to them how disabled you are!

Another thing.

This Capaline, underwear, (Remember, the holidays are upon us), ask for them.

I'll tell you this.
They last so much more times longer, than most other, undies.!!!

I truly mean that!

I have no clue to the company, other than knowing that their stuff works.

Be Well, Ya'll!

Pete


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