[Momlovetobake]

I have not been here much. I want to start stopping by here every now then to help me cope with this awful disease. I have developed RSD through carpel tunnel surgery. I have had this for over three years now. It did not start out small it just jumped right up there. All my upper extremites are affected except my face thank god. The RSD sure is making its rounds to my legs and my stomach. I have noticed a lot of changes in my vision and my body in a whole. To be honest I am terrified to even close my eyes. I am scared because my body is going through so much pain its not a level of 20 its more like 300. I just feel that since th epain is so great i may not even wake up. I am currently on no meds right now. As you heard before drs are a joke. I still go anyway, I will not give up. I have tried medications and its eems that everytime i take something it intensifys my pain. I a sahm for good. That is definitely not a bad thing. It gets boring and crazy seeing the same ole all the time. I don't go out much because im always tired and i need more assistance more than ever. I woud love to be part of your group and learn more about this crazy RSD and to make friends that are going through what I am. I have searched everywhere for groups around here and can't find any. There are tons of cases according to my attorney with people who has it. I asked him to ask them if they would like to share their numbers. Of course i heard nothing. Well here I am and I hope we can be good friends.