Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-05-2011, 07:41 PM #1
Reddawn600 Reddawn600 is offline
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Reddawn600 Reddawn600 is offline
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Default Possible hope for a new treatment?

Interesting article I found on another site regarding trials being done of the effect of the drug Namenda on CRPS patients. It sounds like it's a bit early to to be sure but the data so far sounds very promising.

http://www.rsds.org/2/library/articl...mer_Gustin.pdf

I intend to ask Dr. Shwartzman when I see him next week if he'd write a script for it and let me try it.

Has anyone else had any experience with this?
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Old 01-05-2011, 11:03 PM #2
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This is fairly old information and likely outdated.

The trial/study was conducted on 6 people from December 2002 through July 2004.

This was printed in the
Cfin JPain· Volume 23, Number 3, March/April 2007



I was on this for a short while (9 months) back in 2005 ... at the doses that were permitted by the FDA it did nothing to help my RSD. I was told the dosages needed to help with my RSD would have to be extremely high and those levels had not been tested for safety and it became impossilbe to get insurance to fill a script for this as it was off label use.


I know there are others here that have been on it also. Hopefully they will chime in.


Like everything regarding RSD... No two of us have the same symptoms and no two of us respond the same to medications and/or treatments.


I do recommend talking to your doctor about this... who knows... he may want to give it a try.

If he says yes... Let us know how it works for you... I'd love to give it another try.

Best wishes.

Abbie
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