Oh now, that IS cool. Do you happen to have a link to it by chance??

Ii haven't posted in a while either but think this is a great idea! Please post more information, if available.

frank has a medical alert bracelet....he found one in a jewelry shop...it is a larger one, for men...it says spinal cord stimulator, NO MRIs...complex regional pain syndrome............

I never thought of that. I definitely need to purchase one. Only thing is I can't have anything metal that will get cold touching my skin.

I just got my bracelet from HillCountryIDealogy in the mail today. Oh my gosh, it is just gorgeous! Finally I'm not embarrassed to wear a medical bracelet.

I still love the idea of the chip. I wonder if paramedics & such would have the equipment to read them?

Wow! That is just awesome! I want one!~Tell us everythig! Please~ Please!

Hey everyone!

While reading all your posts, I started thinking that adding something to the effect of "CRPS L Leg" to my existing medical bracelet (penicillin allergy) was a great idea. However, I realized that by adding a reference to CRPS on my medical bracelet, it may do more harm than good- I thought I'd share, and see what opinions you all have...

First of all, due to the unfortunate fact that RSD/CRPS (abbreviated, or written-out) is understood by so few doctors, it's likely that there are even less first-responders who do. So, (using myself as an example), if I were to add something like "CRPS in L Leg" to my medical bracelet, and were in an emergency... I don't suspect the EMT, etc, would know what that message meant, nor therefore, to act appropriately.

Furthermore, what frightens me about it all, and what I meant by "it may do more harm than good" is that the previously mentioned EMT is going to see my "L Leg" referenced on medical bracelet, and prompt them to "investigate" (i.e. touch, etc) to ensure that my "Left Leg" isn't hurt by the accident (thinking it must be "special" - an artificial limb, for instance)... Thus prompting the action we were intending to prevent.

I guess I'm just afraid that until more people (especially the medical community and first-responders) become familiar with RSD/CRPS, that there may not be much we can do to help in those first moments of emergency situations- but at least having the info "on your person" (wallet card, etc.) at all times will alert an ER Doc who hopefully is well-versed on the topic.

There's certainly an arguement for both sides- I'm just sharing my worries, and "playing devil's advocate" I guess.

I think that by doing this- communicating- we are at least getting a bit closer with every post- to more widespread understanding of the "beast" we live with...and once more widely understood, or at least recognized, then we can all check one more concern of our very long list.

Are you asking me or the other poster re: the USB bracelet? Sorry, I'm not sure.

I saw a small clip on tv a few years back featuring a policeman that suggested people program "I.C.E." (In Case of Emergency) into their cell phone's contacts list with the phone number of their emergency contact. It said that most first-responders know to look for this information in an accident victim's cell phone in order to contact their family/next of kin, etc. So what I've done is added a few "ICE" numbers into my phone, so that if nothing else, my family will be able to "clue them in" as to my condition.

Now, to take it one step further... With the huge leap in technology, there are options that are even better- Apps for cell phones such as the iPhone (which I have, and therefore know are available) or Android, etc. These apps can let you organize all of your essential medical info, such as condition(s), meds, allergies, etc. Now, I haven't looked into them enough yet to have chosen one- because like most apps, there are free ones and some you pay for, but as far as this goes, the little bit of money it may cost for the best one is more than worth it...not only for potential emergencies, but will make medical appointments and forms easier and faster to fill out/explain with all relevant info right at your fingertips.

I'm going to research them to see which apps are rated the highest, have the best features, and are the easiest to use. I'll let you all know what I discover. (As I said earlier, I have an iPhone, so obviously I'll be searching iTunes' apps, but many apps that are available for the iPhone are also available for other types of cell phones...or at least I'm sure there are plenty of similar options for other cell phone models).

Just an idea- I'll post again with my findings