[Frannie]

Hi
I am new here & somewhat new to RSD & still very confused about it all.
Does anyone know. Do you lose your nails? If so why & how often?

[lorigood243]

Hi Frannie

I sure am sorry that you are dealing with this disease. there are alot of people who can help you here and everyone is so friendly. I have internal RSD caused my having surgery. I am not familiar with people losing their nails, this is the first I have heard of this. Maybe someone else will know more and answer for you. Ask lots of questions and read lots of posts. there is a lot of knowledge here and warm hearts!
Hugs and blessings
Lori

[Jimking]

RSD has effected my wife's nails (she has RSD). But not the same way as yours, not thin and she's not losing them. Her nails have become very thick and brittle. Her toe nails appear to grow from her toes on an angle, not straight but kind of crooked. She goes to the foot doctor to clip these very thick nails.

[daniella]

Hi welcome to the board though sorry for your pain. My toe nails are so thick,discolored,and grow a weird way. This can be common with people who have rsd and I have read about toe nails falling off. I am not sure why this happens other then the system is not working properly. Just like when people get sores or rashes from rsd. Maybe infammation? I think with proper treatment for the pain these symptoms get better. Are you under the care of a doc who deals with rsd? If not I would get into one asap.

[Frannie]

Hi daniellia

My have not lost any nails yet but the Dr ( my primary care dr ) did say 2 look like they are ready to come off....As for my toe nails ( where my rsd is, left foot ) i have noticed my nails getting darker & they are horrible now when .
The Dr i see is a pain Dr....I am not sure what other type of Dr i should be seeing...She only gives me pain meds & lidocain injections but never even cks my foot...Any suggestions? I have been to many Dr's here , but none can help me but the pain dr & lidocain injections...

[Imahotep]

Originally Posted by Frannie

Hi daniellia

My have not lost any nails yet but the Dr ( my primary care dr ) did say 2 look like they are ready to come off....As for my toe nails ( where my rsd is, left foot ) i have noticed my nails getting darker & they are horrible now when .
The Dr i see is a pain Dr....I am not sure what other type of Dr i should be seeing...She only gives me pain meds & lidocain injections but never even cks my foot...Any suggestions? I have been to many Dr's here , but none can help me but the pain dr & lidocain injections...

When you're new to RSD there's still a good chance to overcome it and this usually requires aggressive treatment. Generally this means attacking it on several levels including injections and therapy. The first couple years are when most remissions occur. Don't let the time slide by.

Good luck. This disease isn't a death sentence even if you can't kick it. Learn your triggers and try to stay occupied with life.

Good luck.

[Lisa in Ohio]

I always treat myself to a pedicure in the late spring and the girl who always does it for me asked about my nails the last time. I really didn't have an answer except RSD and she agreed that it was probably the case after I explained that it is a nuerological disorder. I guess that I am lucky that I can still get a pedicure, wish I could still get a mani!