[gramE]

I was wondering if anyone else's feet look like this? My husband is concerned and I've got no answers for him.

thanks
me, Queenie and Blanche

[Karlea60]

Since I am new here, I was looking through everything and found your picture of your feet. I just wanted to tell you that I have issues with my foot getting swollen and red but have never had it turn blue. But as I have red it is very common to have red hot swollen feet with this. I don't know if I am hitting on what you are asking. If not let me know what it is you guys are worried about and I will help you find answers, don't know is I can but I can at least put an effort out there. Do you have an appointment with your pain med doc?
Read your profile and we have several things in common...the games you like to play, right there with you and I can't remember what else. They need to make these reply pages with the info on them so I can remember what was said so I can comment...LOL I can read it and get to the reply page and swoosh it is all gone
Oh Well!
Yahweh bless you richly and may He help you find the answers to your questions.

[Jimking]

My wife's feet look exactly like those pics. The skin, tone etc. Looks exact. However her nails are very thick and twisted. All I can say it is a sure sign of RSD. There was a time her feet where very swollen. The doc put her on a strong steriod for a week and the swelling went down. That was a couple of years ago and although her feet are puffy they've never returned to that state since.

[NanaBWK]

Originally Posted by gramE

I was wondering if anyone else's feet look like this? My husband is concerned and I've got no answers for him.

thanks
me, Queenie and Blanche

Yes, those feet look all too familiar. I've had some bad flares where my feet are reddish purple and my right foot and leg look like some kind of alien blow up doll. I'm no Dr. or expert, but after 25 years with this bizarre disease saying"that's RSD" seems a logical answer.

Hope you get as much more comfortable as possible soon...
Nana BWK

[cindi1965]

Mine don't look like that yet, but my toes are spreading on my right foot. My question is that if RSD is a neurological disorder, then why do we all have such drastic physical changes..just sayin'

[gramE]

Originally Posted by NanaBWK

Yes, those feet look all too familiar. I've had some bad flares where my feet are reddish purple and my right foot and leg look like some kind of alien blow up doll. I'm no Dr. or expert, but after 25 years with this bizarre disease saying"that's RSD" seems a logical answer.

Hope you get as much more comfortable as possible soon...
Nana BWK

Problem is Nana that the black/blue/purple, which used to be an occasional thing, is beginning to be from the time my pinkies hit the floor, which is a difficult transition in itself. Before I get up they are sunburn red, and after they begin their journey around the color spectrum! I can barely tolerate any thing on them, but i've been wearing a pair of my husband's size 10-13 men's work socks with the tops cut off. No pressure except around the ankles, and I wear as long as I can stand them so we don't have to look at my feet. But the pressure around my ankles is like wearing two pound ankle weights and stirs up every neuron within ten feet and i'm only 5 ft tall.

My husband was expressing concern and I thought you all might help me calm his concerns that my feet were going to fall off. He doesn't
understand that is what I'm hoping for.;}

Thanks,
pat

[gramE]

Originally Posted by Jimking

My wife's feet look exactly like those pics. The skin, tone etc. Looks exact. However her nails are very thick and twisted. All I can say it is a sure sign of RSD. There was a time her feet where very swollen. The doc put her on a strong steriod for a week and the swelling went down. That was a couple of years ago and although her feet are puffy they've never returned to that state since.

Yes swollen mine were also. A double shot of cortisone in my sacroiliac really relieved that. I went from size 5 1/2 shoe to 8-8 1/2. I'm down to a 7 with no socks now, but it doesn't really matter, I don't wear shoes anymore. Except on Sundays and Bible study that makes twice a week. No walking for me, that is invitation to flare city.

Thanks for the info. We have the pics because we are documenting the changes for ins purposes.
pat

[gramE]

Originally Posted by Karlea60

Since I am new here, I was looking through everything and found your picture of your feet. I just wanted to tell you that I have issues with my foot getting swollen and red but have never had it turn blue. But as I have red it is very common to have red hot swollen feet with this. I don't know if I am hitting on what you are asking. If not let me know what it is you guys are worried about and I will help you find answers, don't know is I can but I can at least put an effort out there. Do you have an appointment with your pain med doc?
Read your profile and we have several things in common...the games you like to play, right there with you and I can't remember what else. They need to make these reply pages with the info on them so I can remember what was said so I can comment...LOL I can read it and get to the reply page and swoosh it is all gone
Oh Well!
Yahweh bless you richly and may He help you find the answers to your questions.

Honey, I have to click back and forth all the time to remember. And I have the red, hot, swollen too. I'm equal opportunity on the color chart. My hubby is just needing a bit more info to process and understand what is happening when they turn black.

Thank you for the blessing and offer of assistance. If I don't get these puppies on the floor soon, I'll be late for worship!
pat

[Jimking]

gramE, my wife wears super soft socks and I mean very soft socks. She also wears sneakers without the back or opened healed shoes. I believe the shoes are Sketchers. One concern my wife has is she will keep moving and walking regardless of the pain and visual look of her feet. She is compelled to keep the blood flowing. The steroid she took was predisone (spelling could be wrong). She also goes to a foot doctor to have her nails looked after and she applies plenty of creams on her feet.

[gramE]

Originally Posted by Jimking

gramE, my wife wears super soft socks and I mean very soft socks. She also wears sneakers without the back or opened healed shoes. I believe the shoes are Sketchers. One concern my wife has is she will keep moving and walking regardless of the pain and visual look of her feet. She is compelled to keep the blood flowing. The steroid she took was predisone (spelling could be wrong). She also goes to a foot doctor to have her nails looked after and she applies plenty of creams on her feet.

Dear Jimking
I took the prednisone early in the game before they had diagnosed the RSD, my calf was about 19 inches. It is down to under 17 now, but at the time no one was concerned about my feet. Everyone thought I was being a baby. And had no qualms about telling me to my face.
Soft socks. Do they exist? I have some of those that are supersoft but they are kinda shaggy for lack of a better word and when I walk I can feel everyone of those little threads. I started out with my first larger shoe with the no back tennies. I wore them to work but the top of my foot is a definite trigger point so I started going barefoot, even my one foot at work. Everyone overlooked it. But my walking began to get so slow, and still is. Nylons and those pressure hose feel like I have broken bones in my feet and rubber bands around my ankles.
But I'm pretty much having the blue/purple/black all day now. I try to stay in my sleeping chair for at least 10 hours. In the mornings they are pretty normal looking and have an intense tingling, that kinda waking up after you've sat on them feeling. My first doz steps are difficult but moving around is good. Keeping them warm is my biggest problem, even with socks and slippers they are still ice cold and I get the 'chill' thing running up and down my left leg a lot throughout the day.
I'm scheduled for one more block, and then the 'where do we go from here' discussion. My stress level just now is off the charts as I have SSDI, Disability Retirement from work, Work Comp, Third party insurance suit, and no monetary compensation from Work Comp since Oct. I got more paperwork than the Post office. And today I got scheduled for the mental exam for the SSDI.
But I have a lot to be thankful for and currently am able to mostly take care of myself. My husband does all the shopping. I go out to go to church or to one of my children's homes. No public stuff, well I did go to a couple of elementary BB games, but it was way too far too walk.
Thanks for the info though. Maybe we can keep each other up to date if we find out something new.
thanks again,
with hope for the future,
pat