Sorry for the length, I'll start with the questions if you dont want to read my novel..

How did your drs determine you had RSD, and how long did diagnoses take? How did it first present itself?

I was diagnosed with raynauds years ago, and I believe i have it but in my hands not my feet/ankles/legs. Idk, it just feels and acts differently. Pain is one of the huge differences..About 2 years ago, i hurt my legs in a car accident. They got all mangled about everything while my head smashed through the windshield. Since then swelling and pain has progressed significantly, with a major decline in my condition over the last couple months.

My new pcp (i only just got insurance back for the first time in 2 years btw) touched on RSD, but wants to basically test and retest everything else in the world first. He didn't even look at my feet, whereas the PA asked to (young peppy thing) and literally freaked out in that ZOMGAWSH way
I spent several minutes arguing with him why it wasnt raynauds, him FINALLY concluding i was probably right and thats when he mentioned RSD. My ex's sister has it in it's most severe and debilitating stage and she says mine issue is exactly how hers was at its beginning )=

How exactly is it figured out if theres no test for it? I see a pain specialist on the 9th so maybe he'll be of more help but I guess I'm just worried.

The worst thing in my life happened the other day, I was walking through my kitchen and everything just swelled and seized up..My feet/ankles were black and contorted and I was stuck on the floor screaming for literally hours. Even though things relaxed I still couldnt walk the rest of the day. Not just because of pain, but my legs just wouldn't work..It seems theyre getting weaker and weaker and more prone to spasms. I hate it because I cant work out any more, and I was extremely fit..

when they flare up they range from lobster red, radiating heat and sensations of being on fire to purple/gray/black and ice cold, its a different kind of burning feeling..almost stinging I guess. A bit like the bones are broken too (having broken mult. bones this is the best I can compare it to). The skin on my toes seems to have...died...too, for lack of a better word. Its all crinkled up and wrinkly, there was a greyish-brown patch on the large toe where the skin is worst, i picked it to death and it just revealed more dead skin underneath..Idk if RSD does the cold thing? even when not swollen and freakishly colored I tend to feel painful electrical sensations and deep aches and spasm-like feelings.


Le sigh...I really hope it isnt CRPS though. based on what I've heard, it sounds like I should hope for anything but.