Hi Vics and I doubt you will get an answer. those posts were in 2011. Welcome to the forums I see you are new here. It is a great place for education and support. I wish you the best and hope your discomfort is manageable.

Hello. My eye has been painful for quite some time. In 2008/9 I saw a neurophalmologist. All my eye test were normal. She left it at that. Knowing I did well on tests dosent help me with brain freeze like pain in my left eye, temple, brow, above the ear and double vision (up and down). The pain has continued upto today. I have some eye pain every day. When my CRPS is flaring my vision is worse. I speak to my Neiro very time I see her. She firstthought it was a migraine and that my medications at the time should have helped. Just a couple months ago I went back to a neurophalmologist. Same result. He had never heard of CRPS or RSD. I provided him a packet and recommended he read it. I still have the eye problem. I'm thinking are more like cluster headaches

When my vision doubles on bad days I just rest my eyes as much as possible. I try not to read, use the computer, or do tedious intricate tasks like seed beading. I eventually get clear sight backl in a day or so.

Aha! :hug: its not just me being silly then before a bad flare I get these blurred vision dizzy spells they only last a second but wow.

I forgot to mention that I sometimes wear an eyepatch over my left eye. It helps me. I have mono vision; I can only see out of one eye at a time. My left eye is my primary eye. When my vision is doubled (up and down), if I cover the left eye, it forces me to look out of the right eye. Sometimes my vision is better out of it. My headaches involve the top left front side of my head around the temple and eye. Usually the right side of my head feels pretty okay. Not sure if this would help you. I understand that some people with MS use an eye patch when the muscles in their eyes get confused. You can find them at your local pharmesy or through Amazon reasonably priced. I was a bit self conscious at first. An eye patch does draw attention to oneself. Then I thought again, at least I am able to function a bit better with the patch. Arrrrrg!

I had this issue too...still do from time to time. It's my understanding that most of the problems with dizziness and blurry vision are caused by spikes and drops in blood pressure (something the sympathetic nervous system is supposed to control but since ours is all wonky with the CRPS/RSD...we get spikes and drops out of no where).

The best treatment I found to help was clonidine patches. It didn't make the episodes go away completely but they were a LOT less frequent...I was having them multiple times a day before and went down to a couple of times a week (more if I was in a bad flare). I went off the patches last year after a miscarriage and the episodes have increased but not to the levels I had before. My flares have also been way down since I started treatment with tDCS...so I imagine that has contributed to the reduction in these episodes as well.

My Neuro just prescribed Clonidine for me. Clonidine is used for high blood pressure, but its use in patients with CRPS is supposed to help with allodynia and the deep bone pain too. My Doc recommended I check my blood pressure daily since I am also on lisinopril. Right now my Clonidine dose is very small; we will increase it slowly. The plan is to eventually replace the lisinopril altogether. I'm game for the benefits of pain reduction.

I get blurry vision sometimes from the neuronten/gabapenten that I take. It's one of it's side effect. I hope that whatever is causing yours, that it goes away soon. Take care.

Did u check dr. Hooshmand puzzles?