NeuroTalk Support Groups - RSD and Tooth Loss?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - RSD and Tooth Loss? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/144872-rsd-tooth-loss.html)

Me as well. My oral surgeon said it's a combination of dry mouth due to meds, especially the Lyrica, and clenching my teeth due to pain. Thankfully mine is covered by insurance.

For those who aren't covered by insurance, look for free/low-cost dental clinics around you, or find a teaching hospital. Many will take on cases such as ours for the learning aspect of it.

Oh, the other thing that the dentist had me do is switch to Prevident (prescription) toothpaste. You might want to give that a try as well.

Quote:

Originally Posted by Swatgen27 (Post 750343)

I too have issues with my teeth and I'm on 28 years old so it's not related to the aging process. In fact, I have always been extremely particular about taking care of my teeth by brushing at least twice a day and flossing daily. I'm missing 2 molars (had them pulled post CRPS with no issues of spreading but my CRPS is in the lower half of my body).
I think my teeth issues are being caused from clenching my jaw down everytime I have bad pain which is everyday at this point in time. I haven't lost anymore teeth (1.5 years since my last tooth incident) since switching my toothpaste to arm and hammer brand. It really works great for me as I highly recommend it. I hope everyone is having a great start to their weekend.
Sarah

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I don't understand why it matters about you having your rsd in the lower part of body?

Quote:

Originally Posted by Breezy55 (Post 750063)

First of all,I wanted to thank all of you for your feedback. When I last went to my dentist he now gave me a prescription for SF 5000 Plus,with 1.1% Sodium Fluoride Prescription Dental Cream. It say's to use at bedtime,also not to eat,rinse or drink anything after using this for 1/2 hour. So far I can not tell if it has made a difference? I will post more when I know more. Also I cannot take Lyrica,it caused extreme swelling all over my body. I actually had to be hospitalized! This RSD is really starting to get to me! Also with all this going on,my Mom has less than 2-3 month's before she passes on from having Alzheimer's! She is at home with my Dad and lot's of care giver's. She is now on home hospice,she has a hospital bed set up in their dinning room. As of 4 days ago she is no longer taking any food's or liquid's! Please your prayer's would be helpfull! :smileypray: Love To all! Breezy55

HI Breezy55,

So,so sorry about your mom. We are also dealing with my grandmother and Alzheimer's. It a relentless disease. I will pray for her.

I had the same problem with the Lyrica, gained 70lbs, have lost 30 of it but it is so hard.

I also had the same problem with my teeth and also prescribed SF 5000 and also a medication in pill form that would bring the saliva back to my mouth so it would not be so dry. Sorry it was a while ago and I forget the name but do remember it began with an "R". On a positive side since I have decreased my medications since my ketamine infusions I don't have the problem with my teeth anymore. How it was explained to me is that many medications dry out your mouth which causes decay. It has nothing to do with any many times a day you brush your teeth, it's the dryness. My dentist said the saliva helps keep the decay away. I hope this helps.

Gabbycakes