Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-17-2011, 04:18 PM #1
SandyRI SandyRI is offline
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I haven't tried it (I still have teenagers in the house). But a few other RSDers I know in RI use it often for their pain and spasms and think it works well. The ones I know grow it themselves (and say its a ton of work!).

In this state you are allowed to use it and grow it and we are in the process of approving several applications (out off many) for "compassion centers" that will sell it to patients with scripts. There are certain parameters that you need to fall under to qualify for a script, they will be much tighter here than in California where it seems that just about any and all qualify.

It is predicted that the RI compassion centers will be up and running by late spring. it will be real interesting to see what happens. Colorado passed a med marijuana law last year, there are reputedly something like 27,000 users. The RI compassion center applicants (who are supposed to be "non-profit) are positively drooling thinking about the business they are going to rake in. I am amazed when I hear about the prices they are suggesting they are going to charge!! The stuff is going to be really expensive, and insurance doesn't cover it - a one week's supply will be around $300 - $400. I wouldn't pay that unless I was TRULY desperate. WOW!! The members of the Boards of Directors listed their proposed "fees" for serving on the boards - $75K, $100K, etc. Many of these individuals have FT jobs and these are supposed to be philantraphic positions in nature. Yeah, sure... So what we are creating in RI is another gravy train for the politically connected...

Interesting topic. XOXOX Sandy
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Old 02-17-2011, 04:37 PM #2
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I haven't tried it (I still have teenagers in the house). But a few other RSDers I know in RI use it often for their pain and spasms and think it works well. The ones I know grow it themselves (and say its a ton of work!).

In this state you are allowed to use it and grow it and we are in the process of approving several applications (out off many) for "compassion centers" that will sell it to patients with scripts. There are certain parameters that you need to fall under to qualify for a script, they will be much tighter here than in California where it seems that just about any and all qualify.

It is predicted that the RI compassion centers will be up and running by late spring. it will be real interesting to see what happens. Colorado passed a med marijuana law last year, there are reputedly something like 27,000 users. The RI compassion center applicants (who are supposed to be "non-profit) are positively drooling thinking about the business they are going to rake in. I am amazed when I hear about the prices they are suggesting they are going to charge!! The stuff is going to be really expensive, and insurance doesn't cover it - a one week's supply will be around $300 - $400. I wouldn't pay that unless I was TRULY desperate. WOW!! The members of the Boards of Directors listed their proposed "fees" for serving on the boards - $75K, $100K, etc. Many of these individuals have FT jobs and these are supposed to be philantraphic positions in nature. Yeah, sure... So what we are creating in RI is another gravy train for the politically connected...

Interesting topic. XOXOX Sandy
$300 - $400? I wonder what kind of volume this is? I'm assuming this will not be pill form but the plant itself-smoke form?
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Old 02-17-2011, 05:33 PM #3
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hey thanks for this thread. i have been very interested in mm, and i was speaking to a guy last night who said he would get me some maryjane to try for pain and i forgot if i'm tested i might not get my regular pain meds. although i hope to switch from narcotics if mm works for pain, until its legal i dont really want to jeopardize my regular meds.
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Old 02-18-2011, 03:11 AM #4
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I would try it in a nano second if it were legal in my state and I had a prescription.

My 16 yo, a junior in high school, has requested a trip to Amsterdam for his high school graduation so we can try it together......Yeah, that's what I get for trying to be open to discussions about drinking, drugs, and sex.........

Once upon a time, say when I was in high school and college, I thought it was an 'awful' drug and rated it with cocaine or heroin. I've definitely loosened up in my views on that, probably because I have friends now who smoke pot. I really consider it like alcohol now....aside from the fact that it also invloves smoking. I do currently smoke cigarettes....something I never would have imagined I'd do, so the smoking part of it would no longer be a hurdle for me to get over......although it is a big part of why I don't want my kids smoking it.

I've never been drug tested since I started with narcotics....about 5 years ago, but I would never try illegal pot now.....A) because it's illegal and B) because I wouldn't risk it incase my doc ever decided to start drug testing.
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Old 02-18-2011, 08:43 AM #5
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I would try it in a nano second if it were legal in my state and I had a prescription.

My 16 yo, a junior in high school, has requested a trip to Amsterdam for his high school graduation so we can try it together......Yeah, that's what I get for trying to be open to discussions about drinking, drugs, and sex.........

Once upon a time, say when I was in high school and college, I thought it was an 'awful' drug and rated it with cocaine or heroin. I've definitely loosened up in my views on that, probably because I have friends now who smoke pot. I really consider it like alcohol now....aside from the fact that it also invloves smoking. I do currently smoke cigarettes....something I never would have imagined I'd do, so the smoking part of it would no longer be a hurdle for me to get over......although it is a big part of why I don't want my kids smoking it.

I've never been drug tested since I started with narcotics....about 5 years ago, but I would never try illegal pot now.....A) because it's illegal and B) because I wouldn't risk it incase my doc ever decided to start drug testing.
My wife was tested twice by her doctor. This really got under my skin because Suzy plays by the rules in every way, yet her doctor felt she was not taking her meds correctly and even told us this (I go with her at every doc visit.) The last urine test cost me out of pocket around $700 dollars.
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Old 04-01-2013, 07:33 PM #6
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Default Hey Jim its not $700

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My wife was tested twice by her doctor. This really got under my skin because Suzy plays by the rules in every way, yet her doctor felt she was not taking her meds correctly and even told us this (I go with her at every doc visit.) The last urine test cost me out of pocket around $700 dollars.
HI Jim the Sticks for Pot are $6 if you buy 100 ,I say if someone does crank coke etc they dont have RSD or a mind
Gh
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Old 04-02-2013, 09:11 AM #7
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HI Jim the Sticks for Pot are $6 if you buy 100 ,I say if someone does crank coke etc they dont have RSD or a mind
Gh
Mark
Say again, rsdno? Not quite understanding.
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Old 02-18-2011, 08:45 AM #8
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Hi Jim - That's for a bag of the dried up plant stuff that you smoke by rolling into joints or by some other method. Perhaps the liquid derivatives (marinol I think it is called?) will be available also for people who don't want to smoke.
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Old 02-18-2011, 09:44 AM #9
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Default Hi Jim,

Colorado is the place to be if you want it for pain. They have passed it big time here. We have dispenseries all over the place. They all have a green cross in front of them, you can't miss them.

They are also setting aside places in the High Schools for kids to smoke it here that need it. Thankfully both of my grandson's are out of this high school. This area here seems to be the most open to it.

Colorado Springs is already seeing problems from letting this happen. It wasn't voted on by the people so it was just snuck in on us.

Now they make soda pot in Colorado Springs so I have warned my boys to not take drinks from anyone.

I think your wife is smart in not wanting to do it unless it was prescribed. I wouldn't even then.

Now we are going to have Mothers against drugged drivers as well as drunk.

I'm very conservative.

Ada
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Old 02-18-2011, 11:13 AM #10
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I'm against people getting involved with "non-profit" compassion centers for supposedly "altruistic" reasons and then raking in a fortune off of them by charging a whole lot of money for something that only a limited number of suppliers will be allowed to distribute in our state. And in RI, the ones that will be licensed will the ones that know the right people. That's the way it always works. The administrative fees that are projected to be paid to the board members and administrators are absurd.

As for as using medical marijuana for pain, I think its truly a personal choice. I suffered enormously from pain from my RSD for over 4 years. There were days I absolutely couldn't move from bed except when I had to vomit. Too many days to count...if pot works for someone and helps give them some of their life back, then so be it.

Just a personal observation - the RSDers I know that use pot on a regular basis for their pain tend to rarely go out and get little done. I think that it can space you out for really long periods of time and you might become one of the "wastecases" we all remember from highschool. I also quit smoking many years ago and wouldn't want to ever inhale anything ever again...

Last edited by SandyRI; 02-18-2011 at 12:09 PM. Reason: editorial
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