i have CRPS type 2 and honestly this crap is spreading. i dont need another dr to tell me im crazy. its spreading.

I was also told by two drs and a physical therapist that rsd does not spread. Yeah. It does. Mine went from right foot to hip, and I also display symptoms in my right hand and back, and since my scs was pulled, my left foot. This is why people think those if us with rsd are crazy. I'm sorry that happened to you. Hope you feel better!

I have been having the same problem. Mine is spreading and I can't get a doctor to ADMIT IT, that's what I think they don't want to do. I'm dealing with WC through all of this...so making you sound crazy is their M.O. Grrrrrr!

its funny how this was started in february and resurfaces today.. as I went to dr appt. as I had mentioned in another thread.. I have had a mean bout of itchy painful areas in red areas and some other areas.. well for the first time I was examined from top to bother and was told flat out.. IT SPREAD>>>> my original injury was right leg. now RSD is everywhere from the waist down,, in the belly(new) now in my left arm (kinda new by cple of mnths) and my right arm(new) my back, neck, chest, and lateral areas.. these are new as well.
now I have an orthopedic surgeon, neurologist, pain management dr, and spine specialist all telling me that spreading is a definite part of the nature of RSD. they have all told me I need to be careful to not injure any other parts of body, even a little as it can cause spread ,same as surgery . so I would ask your dr.. i he is up to being schooled if so great have him come o this site , the read the RSDA new letters, or dr hoshmans research so on and so forth . if he says no.. the do what debbie said...RUN FOREST RUN!!!!!

I wish I had better news. I wish your doc was right. But I have CRPS II, and I can confirm, and there is no doubt about this, that mine has definitely spread. Although it has taken many years for mine to spread. Mine started with a nerve injury during back surgery, waking from surgery with it in my right foot, ankle with excruciating pain and with numbness in my calf. After about 6 years later my other foot and ankle started to mirror the symptoms. Gradual at first. Many months of little twings, then about a year into the spread it was nearly as bad as the original limb. 18 months or so and I was starting to get twings everywhere. Everywhere! Some more severe then others. But those other places above the waist are always random on when and where they strike and how severe it will be. But both legs & feet are a serious problem now. I will say this though, the CRPS is still most prevalent in the original site (first foot/ankle/leg to be afflicted). But the second leg/foot is running a close second. Go to google scholar and search RSD CRPS Spread.

I do hope this is not the case for you and perhaps it is something else. But I knew with mine. It was faint at first, but after some time, and worsening, I knew and for sure there is no doubt now. xoxo

I started this thread in February of last year. Since then it has been confirmed that not only did my RSD spread but it was also the culprit for almost all of my new symptoms (the others being caused by the meds the doctors were putting me on and off of like crazy people). Haven't seen the neurologist I was talking about since last April I think it was...nor my primary doctor or the pain management doctor I was seeing at the time. I think back to all the runarounds I got from the docs back then and it makes me so very angry. Reading my responses from 2011, I see that I was way too quick to try and defend and make excuses for doctors. Not the case anymore. Quite frankly...if they don't know what they are talking about then they should not make comments like he made...plain and simple. Whether his field or not, he was giving a patient bad information and if I had stayed with him I don't think I would have ever gotten proper treatment for the condition that I really DO have. Moron is right...which my new doctor confirmed when I told her that he was the neurologist I saw. Apparently he told several of her patients in the past that there was no hope, that they would die or never get better, all neurological things. They went and got second opinions and recovered or managed to live many many more years. I tell you...doctors like that are SO dangerous.

I was fixing to ask this same question. Because i have been dealing with this for many months, and now i finally have a diagnoses. I have it in my right wrist all the way up my arm. I have started having tremors in my left hand, and some pain ( not to the extent of my right hand but still not fun) i also have this burning pain from heel of foot up to my knee. My leg gives out on me quite a bit, and i rolled my ankle about a month ago, and this pain started shortly after and has yet to go away. Any time i sit down, if i try to stand up its as if my knee down is numb and goes all haywire when i try to get up. I dont know if its just me thinking its spreading or it really is its all so new to me..

it doesnt help i live in the sticks, with no really good doctors, houston is about an hour away, but i havent found a good doctor yet, if anyone knows of a good doctor in the houston area please let me know!

Did you get anything for the itch though?

WC is the worse. Mine is wc as well. Everytime I have a dr.'s apt. or need a script they delay the process. You got to -

I have had RSD for four years now. I have been told the whole time that this doesn't spread. I am sooooo frustrated by the fact that it DOES spread. I feel like I have aged 50 years in the last four. I am finding more and more that Drs know nothing about this condition and all they want to do is prescribe pain meds, give injections or insert crap into your body (ie spinal stimulator, etc). I am allergic to all the pain meds they tried and the nerve block injections were to no avail. Anywho, just venting and agreeing with the others that RSD DOES spread. Sorry to burst your bubble, Sweetie. This is a painful and relentless condition. Prayers.