[renhenne]

I have had RSD for some four to five years now. Last summer, I had not been sleeping for months due to pain. I started having new symptoms out of the blue. I started to get dizzy feeling and almost like a "zapping" feeling in my face that traveled down my arms. My husband took me immediately to the ER where on the way I passed out & had a seizure. I was in the hospital for weeks. They determined that I wasn't having actual seizures. They called them "sudo" seizures. I would have extreme pain in my leg (where the RSD is) when I came to. I would also have fainting spells. They said they weren't "real" seizures & fainting, but they said that about my pain at first before they found the RSD, & the "seizures" didn't stop until I was put on 2 different seizure meds. As far as the fainting, I have stopped that along with the seizures. But there are a few time that I am in such extreme pain that I feel flush like I could faint. I was wondering if anyone with RSD has had any of these symptoms?

[hannah1234]

i have those when I am really flared up. the sudo seizures. They scared me at the beginning because nothing in particular triggered them. I wouldnt know where I was, what I was doing, or anything after it was done. A few times I was at the store. I think its just part of our brain that just shorts out. I have no idea... hang in there!

[edever34]

In the onset of my RSD I experienced what I then called "spells" that put me in the ER 3 times. This was before diagnosis. I recently learned from another RSDer that what I experienced were anatonic seizures which ARE REAL!!!!They started with the buzzing in my head then loss of use of my neck,arms,legs etc. After my 3rd.ER trip the neuro. Dr. there told my husband that I just needed a shrink!~!! We no longer live in that area and I now have an SCS that has stopped these seizures as well as some of my RSD pain . Check it out and hope this helps-Fondly-Carol

[renhenne]

Originally Posted by edever34

In the onset of my RSD I experienced what I then called "spells" that put me in the ER 3 times. This was before diagnosis. I recently learned from another RSDer that what I experienced were anatonic seizures which ARE REAL!!!!They started with the buzzing in my head then loss of use of my neck,arms,legs etc. After my 3rd.ER trip the neuro. Dr. there told my husband that I just needed a shrink!~!! We no longer live in that area and I now have an SCS that has stopped these seizures as well as some of my RSD pain . Check it out and hope this helps-Fondly-Carol

Thank you soooooo very much!!! It is nice to know that I am NOT crazy!!!

[renhenne]

Originally Posted by edever34

In the onset of my RSD I experienced what I then called "spells" that put me in the ER 3 times. This was before diagnosis. I recently learned from another RSDer that what I experienced were anatonic seizures which ARE REAL!!!!They started with the buzzing in my head then loss of use of my neck,arms,legs etc. After my 3rd.ER trip the neuro. Dr. there told my husband that I just needed a shrink!~!! We no longer live in that area and I now have an SCS that has stopped these seizures as well as some of my RSD pain . Check it out and hope this helps-Fondly-Carol

Thanks Carol. What is an SCS? I have an appt with the Mayo Clinic at the end of December and would like to discuss this with them.

Renee'

[demich]

I am so glad to run into your message. I began having spread of RSD 4 weeks ago and i had buzzing in back of head that ran down back of my neck, ringing of the ears, back burning, fading in and out of mind, contracting in right hand and lower back down in both legs with toes and feet flexed down that left me numb waist down for about 5 minutes. First time it sent me to ER in a panic but doctors said I beleive the pain is there but it really is not, referred to shink. ---------RSD is result of workers comp injury to right ankle Jan 2012 and I cant get a dignosis. Can anyone recommend in Louisville KY area, willing to travel some but limited since on wages suspended in May and my only source of income is 220$ child support. I had to move in with my mother, safety reasons too. I am 40 years of age with Bachelor in nursing and on foodstamps. Looks like the student loan will default----haaaahaaaaa-have to find laughter in something.

[tos8]

Ok well this is VERY intersting! I devolped epilepsy 3yrs ago, after my RSD. My drs and I just didnt relise they were possibly related. I have complex partial, myoclonics and secondary tonic clonic seizures. I am on 3 diffrent meds for them.