Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-21-2011, 12:14 AM #1
Dubious Dubious is offline
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Quote:
Originally Posted by lindatall2 View Post
Hi,
I'm newly diagnosed and still in the 3-4 month window of opportunity I've read about. I have it in both arms as a result of surgery I had in December. I've been on neurontin, lyrica, lidocaine pain patch, fentanyl..nothing relieves the pain. It does go away at night though, which I find kind of odd, but am very greatful for. It only hurts at night if I move or stretch my arm a funny way.

I'm scheduled for a stellate ganglion nerve block on March 4. The Santa Monica UCLA pain clinic doesn't do ketamine infusions. If the block doesn't work I want to go right to ketamine. At SM, you first see a resident, then a physician. It's awful!! I asked the resident about Ketamine and she said, oh you're not right for that...you get hallucinations, etc. What an idiot. I didn't even bother asking the physician.

I'm willing to go into my 401K to pay for the infusions as I doubt blue Cross/Blue Shield pays for it. My question is the doctors I've googled who do ketamine all want a referral. I don't know that my pain doctor will do it.

Anyone know of any ketamine infusion doctors in LA that I could just go to without a referral? I won't live with this kind of pain.

Thanks,
Linda

Hi Linda,

I can't remember who it was on the list but if you are interested there is a doc in Torrance that did a couple ketamine procedures on a list member. Just let me know if you need it and I'll find the post and doc.
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Old 02-21-2011, 02:56 AM #2
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Quote:
Originally Posted by Dubious View Post
Hi Linda,

I can't remember who it was on the list but if you are interested there is a doc in Torrance that did a couple ketamine procedures on a list member. Just let me know if you need it and I'll find the post and doc.
My guess is you're speaking of Thomas M. Leverone, MD:
3445 Pacific Coast Highway, Suite 110
Torrance, CA, 90505
(310) 325-4555
(310) 325-5005 (fax)
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Old 02-21-2011, 01:05 PM #3
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Default Dr. Leverone

I'm not going to get into a my doc is better than your doc scenerio, but I am going to provide what I know about him and I am also compiling a list of questions that hopefully he'll find the time to answer.

I welcome any/all questions that anyone would like added to my email, either privately or posted.

thankyou, Dee
-----------------------------------------------------------------------

Dr. Thomas Leverone
Medical School:
University Of Minnesota Medical School
Minneapolis, MN, United States
Residency Hospital:
University Of California Los Angeles
Los Angeles, CA, USA
Year completed: 1987
Internship Hospital:
UCLA Harbor General
Torrance, CA, USA
Year completed: 1985
Fellowship Hospital:
UCLA/Cedars Sinai
Los Angeles, CA, USA
Year completed: 1988

MEMBER
AMA
ASA
CSA
LACSA

Dear Dr. Leverone,
You have helped me with my CRPS/RSD more than any other doctor I’ve seen, and you know I’ve seen quite a few. Your ketamine infusions have been a great service to those of us needing them. I am trying to help spread the word of your service and was hoping you could help by answering a few questions to ease the mind of those not familiar with you and your practice.

1. When and where did you first become aware of CRPS/RSD?


2. Are there other medical conditions that you treat? ( not counting RSD/ketamine)


3. Where is your practice located and how can patients contact you?


4. What are your thoughts on the ketamine coma done in other countries?


5. If someone is newly diagnosed, should they go straight to ketamine infusion or should they go through the long list of treatments ie blocks, stimulators, pumps, meds, etc., first?

6. As memory serves me ( and it isn’t that great lol) isn’t the dosage you give dependant on the patients severity, weight and other factors?


7. One fellow RSD’er was told that RSD does not spread, your thoughts on that?


Thank you so much for taking the time to help not only me, but for those who may decide to seek your services. You’ve been a Godsend for me and I cannot express my gratitude enough.
__________________
~ Refuses to use speller checker becasue Im not perfect and Im okay with that ~
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