Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-07-2011, 04:30 AM #1
renhenne renhenne is offline
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Confused Need help

I had an SCS Implant surgery for RSD for my legs (with full success) & was wondering if anyone has heard of, or experienced, RSD starting in the incision site if their implant??? Please help???? Really concerned
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Old 03-07-2011, 06:51 AM #2
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I have heard of people have issues with the surgery from the scs. I would call the doctor who did this surgery asap.
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Old 03-07-2011, 08:10 AM #3
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Quote:
Originally Posted by daniella View Post
I have heard of people have issues with the surgery from the scs. I would call the doctor who did this surgery asap.
Thank you Daniella, I plan to call as soon as the office opens this morning! This just started Saturday night. I am, needless to say, terrified. This was supposed to be the beginning of my life, ya know?
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Old 03-08-2011, 07:03 AM #4
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I am sorry and can understand your fears. I hope your doctor can give you some answers. I will say some pains and symptoms I have had thru this I thought was an rsd spread cause the pain was so high and for so long but it did go away with time. I am a slow healer that is for sure so maybe that could be what is going on with you. I hope regardless you get relief and answers
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Old 03-08-2011, 07:09 AM #5
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Hi renhenne,

I had a SCS implanted to help with the RSD in my right leg and foot. After my 2nd surgery for this in Dec of 2010, I began to experience symptoms of RSD in my back, arms, neck shoulders and fingers. I am now being told that the due to the surgery, the RSD has "flared" into those areas. If they told me before the surgery (or if I had read on my own) that surgery increases the flaring of RSD, I would not have agreed to the surgery. Right now, I am still having trouble getting my stim to work and cover the correct areas, I have had 2 additional blocks to try and help with the "new area". Nothing seems to be working. I am not sure what to do next, but I do know that surgery WILL NOT be an option.

Best of luck to you, continue to talk to your doctors - ask questions, and do not be afraid to insist or see someone else.
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Old 03-08-2011, 09:37 PM #6
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Redhenne...

Here is the link to our SCS and Pain Pump Forum....

http://neurotalk.psychcentral.com/forum118.html

There may be someone there with similar situation as yours....


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