Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-05-2015, 09:39 PM #1
tbug532 tbug532 is offline
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Default Ignorance can kill!

I truly understand your situation. I was lucky and had a Dr for 23 years that devised a pain management plan that worked. But unfortunately he abandoned me and now I am experiencing RSD symptoms that were under control for years.
I asked the Dr today "What happen to Doing no harm?" She quickly replied if you don't like it get another Dr!
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Old 05-05-2015, 09:57 PM #2
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Quote:
Originally Posted by tbug532 View Post
I truly understand your situation. I was lucky and had a Dr for 23 years that devised a pain management plan that worked. But unfortunately he abandoned me and now I am experiencing RSD symptoms that were under control for years.
I asked the Dr today "What happen to Doing no harm?" She quickly replied if you don't like it get another Dr!
Write, email or call your senators/congress persons tell them what is happening to those in real pain.. That you can’t get legitimate help any more..

Some members have gotten help by doing this.. it probably helps to be specific in what you need help with - finding a good dr that will use the plan that worked best for you. Explain this when you contact them.

Feel free to start your own thread, this is quite an old one...
new RSD/CRPS thread link-
http://neurotalk.psychcentral.com/ne...newthread&f=21

If you want to share your location/state, or a large city nearby, members may know of good docs.. for that area.
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Old 05-06-2015, 09:13 PM #3
LIT LOVE LIT LOVE is offline
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RSD/CRPS is a neurological disorder, but a component of that is that it does cause depression. In fact, depression is a symptom used to diagnose it.

Stress can absolutely exacerbate pain symptoms and learning not to guard effected limbs should be a top priority. Learning to breath deeply or meditate when you begin to experience a flare, can be a great help. Even listening to soothing music can make a difference.

On top of the stress caused by severe pain, there are a whole host of difficulties that often accompany this illness. Isolation, permanent disability, financial instability, insomnia, etc. So for anyone with a legitimate case of CRPS, I'll say don't let any doc try and convince you that CRPS is a psych issue. It's a medical issue that effects brain chemistry. And yet, a pain psych doc might be a huge benefit at various points along one's journey dealing with this disease!
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