Write, email or call your senators/congress persons tell them what is happening to those in real pain.. That you can’t get legitimate help any more..

Some members have gotten help by doing this.. it probably helps to be specific in what you need help with - finding a good dr that will use the plan that worked best for you. Explain this when you contact them.

Feel free to start your own thread, this is quite an old one...
new RSD/CRPS thread link-
http://neurotalk.psychcentral.com/ne...newthread&f=21

If you want to share your location/state, or a large city nearby, members may know of good docs.. for that area.

It's all in your head, Lose them.

RSD/CRPS is a neurological disorder, but a component of that is that it does cause depression. In fact, depression is a symptom used to diagnose it.

Stress can absolutely exacerbate pain symptoms and learning not to guard effected limbs should be a top priority. Learning to breath deeply or meditate when you begin to experience a flare, can be a great help. Even listening to soothing music can make a difference.

On top of the stress caused by severe pain, there are a whole host of difficulties that often accompany this illness. Isolation, permanent disability, financial instability, insomnia, etc. So for anyone with a legitimate case of CRPS, I'll say don't let any doc try and convince you that CRPS is a psych issue. It's a medical issue that effects brain chemistry. And yet, a pain psych doc might be a huge benefit at various points along one's journey dealing with this disease!

Just like they said with fibro, now it's a neuromuscular disease. Anything with chronic pain related to it they think it is one size fits all. Ask him is neuropathy pain is caused by stress. I just want to cry hearing all this garbage. Acute pain is related to an immediate injury until it heals, chronic pain is anything that last longer that 3 months. After that it's considered a disease in itself. BS. There is a big difference between arthritis pain and burning nerve pain and other symptoms of RSD. If RSD can affect your vascular system how then can it be a mental disorder, because of flight or fight? Well your eyes, lungs, heart. bones and skin all are dependent on sympathetic nervous system. What do you do about the peripheral, central and autonomic nervous system disorders and digestive/immune system problems associate (caused in my book) by RSD? I have had fibro since 1990 and believe me when I got RSD it was NOTHING like what I had ever experienced with fibro. I am so traumatized by stupid doctors. When they don't know anything they dump it in your lap. Physician heal thyself! Believe me it is just that too. I am sorry I am in tears, this is so much BS. Somehow we are defective human beings unable to COPE with stress or life. Well I was fine until I had foot surgery. It took me 52 years to develop all these personality disorders, catastrophysing, drug seeking, malingering and flat out dreg of society. I do have PTSD CAUSED BY THEM. Do no harm??? Doctors have totally screwed me up emotionally. I am not sure the LIMBIC SYSTEM is involved. I think that's a BY-PRODUCT of abuse from the medical community we all seem to have to endure. They make you scared to ask for help. I have yet to leave one appointment not in tears over something said to me that was offensive and demeaning. When the demi-gods can't fix it, it MUST BE YOUR FAULT AND YOUR DOING. YOU CAUSED IT! You just need counseling to fix whatever it was you did wrong. Well I can't undo my foot surgery decision, if I could I would. I would be working, playing, having sex, only be on one pill a day and most of all I would be happy and healthy again.