Also with TOS, and some other conditions, there is what is called "delayed pain" - sounds like you are having some of that.
{ the pain escalates hours after the activity & can cause a flare up}

hi Karen,

delayed pain has been one of my worst symptoms with RSD. My RSD began with a torn rotator cuff and 2 repair surgeries. After any significant activity involving my arms, I typically develop intense migraines. i have also been diagnosed with occipital neuralgia because my RSD spread up into my head. the migraines cause flu-like symptoms and are a total nightmare!! ketamine infusions have been of enormous value. I tried just about every other treatment first.

I was never diagnosed or treated for TOS. But I have many of the symptoms. Just not the one where when you lift your hands up to the side of your head, they turn white, or something similar. Ain't so Bad Pete can tell you about that one if you are interested.

Good luck to you, I can totally relate to what you are experiencing!! xoxo Sandy

Karen,what an awfull experience to go thru! Please do not ever go back there again!! I have never heard anything like that? However you and some other's are right about how we(meaning us RSD people!) really get the run around! I think that it is mainly many healthcare worker's still have no clue about our disease! Take it EASY! I hope that you will began to feel better! Alway's Breezy55