NeuroTalk Support Groups - Describing your life to someone....

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - Describing your life to someone.... (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/146869-describing-life.html)

Teresa Marie,(beautiful name)
May your house always be too small to hold all your friends.

have a glorious day

Dear Teresa,
I am so sorry for your suffering and your loss.
We all long for the life we use to have. Our normal days are now spent being warriors against pain. Not the life we ever dreamed of. Not that you havent thought of this, or that you even want to...but have you thought about being a tutor out of your home? My sister got her diploma to teach English as a Second language. So she could privately tutor people. she charged i think 50 per hour and had several clients either come to her home or she would meet at a coffee shop.

i work from home selling office supplies, which was the career i had before i got sick. i dont make the money i use to make yet, but i am working on building my client base. it helps to distract me from my pain.
Just a thought...
Blessings and Peace!
Lori
PS I have internal RSD, it affects my abdomen and i am mostly bed ridden and have been for 6 years.

Quote:

Originally Posted by Teresa Marie (Post 759860)

Thank you for giving me the opportunity to read this beautifully written note. I suffer from bilateral foot RSD and am presently on disability. My friends have disappeared, my "old" life as a teacher has gone to ashes, and my new life consists of constant pain.

I have always placed the burden of continuing those friendships upon myself. Here at last I have an opportunity to rest in the knowledge that while I may rarely go out, my friends are always invited in.

I couldn't have said it better! This is the best desxription on chronic pain I've ever read!

God Bless all of us!
Melanie Sackett-Ghendar

Quote:

Originally Posted by yelocateyes (Post 760174)

I couldn't have said it better! This is the best desxription on chronic pain I've ever read!

God Bless all of us!
Melanie Sackett-Ghendar

Thanks for posting. It really helps me understand my boyfriend. He hardly ever complains and tries so hard to smile and make everyday conversation with me. SO at times, I think...wow! He's feeling good today. And I guess what he is actually doing is just trying to make it through the day.