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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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03-24-2011, 10:41 PM | #11 | ||
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Sandy-I agree with you 100% I wouldnt let this Doc touch me with a ten foot pole. If your gut tells you something -then act on it. Thanks for your reply -i hope it is heeded. fondly-carol
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"Thanks for this!" says: | AintSoBad (03-25-2011) |
03-25-2011, 06:24 AM | #12 | ||
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Please trust your instincts. The most horrible experience I had was with a doctor that I had a gut feeling about but kept my appointment anyway because the doctor was recommended by two PT'S and an orthopedic surgeon. I was also worried about the time it would take to find another doctor. I cannot stress enough the countless folks who have had a spread by CRPS by blocks. Please do not take any chances. A doctor who lacks compassion and has a poor bedside manner is not a doctor to treat CRPS. If you can get to New York City I highly recommend Dr. Cruciani at Beth Israel. Teri |
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03-25-2011, 07:27 AM | #13 | |||
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03-25-2011, 05:32 PM | #14 | ||
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In Remembrance
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I don't know, maybe I skipped over, but have you gone to
www.rsdsa.org and looked up a doctor there? They go by zip code. It's a very good place. As this is! I agree with many here about not revisiting this doctor, especially for blocks. Blocks don't cure, they're merely diagnostic. So get to a good neuro! Who KNOWS RSD, and can treat you conservatively. Mine is Dr Knobler in Fort Washington PA, west of Philly on the PA TP. May be a drive for you. But you may consider calling his office for a referral? He was Dr Schwartzman's partner at Jefferson in Philly. I truly wish you well. I've been with both of these doctors for 20 years, and it took a chiropractor to send me to them after 7 years of non diagnoses. Hell. Let me know, if I can help. Pete asb |
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03-26-2011, 09:50 AM | #15 | ||
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Elder
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If your instinct is not to like this dr. I would go with that feeling. I won't let someone touch me with a needle that I don't like. I am almost 60 and fret about tests alot. I have left doctors because of poor bedside manners. You deserve some kindness while you are being treated. ginnie
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03-26-2011, 07:18 PM | #16 | ||
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I am not sure that "no pain no gain" is a good thing with RSD.
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03-28-2011, 02:16 AM | #17 | |||
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Senior Member
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Hi Sonny -
Sorry to be late getting in. I agree with what's been said about any professional who projects a "my way or the highway" attitude. At a minimum, s/he will not be listening to you. Rochester, NY not being a small town, I was able to come up with two pain clinics, both of which, curiously enough are at Rochester General Hospital. I don't know if you've checked them out before, but it might be worth the look. The first is part of a much larger practice group, Anesthesia Associates of Rochester, PC, dba, Pain and Symptom Management Center. http://www.aarpc.com/ourservices/#pain It's staffed by three pain specialists, one of whom, Steve Giriyappa, M.D., aka, Sudhir Giriyappa, MD, is certified by the American Board of Pain Medicine (ABPM), http://www.association-office.com/ab...dir/search.cfm which requires the completion of a one-year fellowship in pain medicine, on top of a physician's residency, as well as passing an 8-hour written exam, while the other two specialists, Eric D. Dotson, MD and Gilbert Proper, MD, apparently are certified through The American Board of Anesthesiology (ABA) which appear to be substantially equivalent to those of the ABPM, except that only board certified anesthesiologists are eligible to go on to receive the sub-specialization. http://viewer.zmags.com/publication/...9#/1f3f8369/23 (And to verify that your current treating pm physician is certified in Pain Management by the ABA, go here: http://www.theaba.org/home) The other clinic at Rochester General is the Center for Pain Management. http://www.rochestergeneral.org/roch...gement-center/ At least right now, the webpage only lists a single physician, its medical director, Calvin Chiang, MD, an anesthesiologist with sub-specialization in pain medicine. Both practices appear to be substantially comparable, with a number of RNs assigned to each, covering the same basic range of services, although the website for the Pain and Symptom Management Center suggests something of a WC component to its practice. That said, it’s hard to see how Dr. Chaing survives as a one-man band; my guess is that it’s only a temporary situation. I hope one of these alternatives is helpful to you. Mike |
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04-20-2012, 10:39 AM | #18 | ||
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i am so sorry for what you've gone through with bad doctors. i have CRPS in my foot, and the first doctor i saw had me take me shoe off, LEAVING MY SOCK ON, and told me "your foot looks fine to me." that was our entire visit.
another doctor attempted to conduct our appointment with his entire body in the hall and just his head poking into the room where i was sitting. i refused to say a word till he had the decency to step completely inside. |
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"Thanks for this!" says: | ginnie (04-20-2012) |
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