Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-04-2007, 01:50 PM #1
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Frown Me In Big Trouble!!!

My Doc weened me off my Oxy about two weeks ago. It went real well. About two weeks before that she put me on Cymbalta. It takes about 6 weeks to totally get into your system but hey I'll try anything.

All was going well until about last week, both my legs started aching more than usual. I mean I have Restless Leg Syndrome and Peripheral Neurophethy as well as RSD but it has never been real bad or annoying. One Requip per night and I was good to go. Well the aching in my legs got more intense centering around my knees mostly and going up and down to my feet and up to my hips. Getting bad enough to keep me from sleeping.

I started finding I had less and less energy to walk as the days went by and the pain (BAM!!!) shot through me like a rocket. But than quieted down to a very very intense dull ache now from hips to toes 24/7 nonstop. Well last night I hobble up the stairs, got to the top and simply collaped. Not a lick of energy left in me. My legs weighed a thousand pounds and hurt like crazy. I crawled to my room and died.

I toss and turn all night only to get up this morning to find both my knees are the size of large melons. They are hard as a rock and I cannot move my legs from the knees down. Hips down to knees is okay. I can wiggle my toes a little but not much. The skin is stinging burning but ice cold to touch. It is not blue but bright red.

If I had gone my local Emergency Room they would treat me like I should be used to this "Mr Chronic Pain Man" and accuse me of seeking drugs. I don't need the added aggravation.

What is happening? Any ideas. It hurts soooooo bad. Please offer anything you can throw at me.

Signed - "So Desparate I'd Concede To Admitting To Be The Real Father Of Anna Nicole's Baby - Just For Five Minutes Of Relief"
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MARKY MARK THE MAN FROM MAINE...GOT RSD AND LOST HIS BRAIN!!!. AND NOW HE HAS TO USE A CAIN!!!
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Old 03-04-2007, 02:32 PM #2
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Hi Mark,

When I went off the the strong meds. I decided to go very slow. I also was told to drink a glass of Merlot. I am still on valium, never tried Cymbalta.

Big Huge Hugs, Roz
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Old 03-04-2007, 02:37 PM #3
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Hey

I have experience this before and I have the ache that you are talking about - it's like tooth and ear ache in your bones?

Can't suggest anything really that will help - I just try and get on with mine and occasionally bite holes in blankets.

loads of love

FRxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
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Old 03-04-2007, 07:42 PM #4
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I found cymbalta to be a very dangerous drug. it does mess up the fluid balance in the body. after two days on it, i spend three days in bed, i could barely move. the bad part was i felt so relaxed and pain free, i hated giving up the drug. the doctor and pharmacist said it took all the fluid out of my system and into my extremities. so be careful.
i think so many drugs are unproven and we are the guinea pigs ....
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Old 03-04-2007, 07:55 PM #5
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i wish i had something useful to offer - i don't - but have to tell u i laughed out loud at your signature.

i wish i could send u a big laugh too.

liz
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Old 03-04-2007, 08:00 PM #6
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Default Cymbalta

I also found Cymbalta very serious drug for my daughter.
I would be so cncerned for fluid build up. If your not peeing well too it can be backing up with poisons in your body.

Many meds made my daughter's brain unable to tell the bladder to pee. Also she retained fluid, and had high blood sugar.

I would call, insist the only change is the addition of cymbalta and how bad things are.
Something has to be done.
dianne
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