NeuroTalk Support Groups - what about liposuction for my bad inflammation

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - what about liposuction for my bad inflammation (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/147737-liposuction-bad-inflammation.html)

Thanks Daniella

I have been to Hookins 3 times and they couldnt figure out what was wrong with me before i got the RSD diagnosis from my Primary care doctor.
I saw their allergy and immunology dept, he Rheumatology dept...and one other dept i cant remember.

I was also seeing the top dr in Rheumatology for 2.5 years and he didnt know i had rsd. He said he gives up on me so i left his practice...then 3 months later when i was diagnosed...i called him to tell him what i had because he had tried so long to figure it out...and he was like "no you dont have RSD you only get that on your extemeties...and i said no you can get it internally too...and he was mad at me, like who mi to tell him that he is wrong! it made me sad that he treated me that way...so i just said good bye and never called him again.

there is a dr at GW hospital who is known for working with RSD , but her main thing is ketamine infusions which i dont want. i took it orally for about 6 months and I hallucinated non stop...it freaked me out too much!

I am praying that God will find me the right doctor to help me with the Mannitol IV very soon.
Blessings to all
Lori

Quote:

Originally Posted by daniella (Post 758966)

I just responded to your neuro post.
I know when things get so bad one may try a procedure etc that may not be the best for them because of being so desperate. I would never in a million years get any type of plastic or surgery even like botox which some use for pain. I think there is too much risk in damaging other nerves or flaring the current rather then settling it down.
I think it is a good idea to see a neurologist. Have you also thought of maybe going to a hospital where different specialties look at your condition like Mayo or John Hopkins?

Quote:

Originally Posted by lorigood243 (Post 758299)

my swelling is just crushing my insides...the doctors arent offering any way to help me.
i am calling around to the neurologist offices to see who treats rsd and if they would try the mannitol drug on me. but then i was hinking if i had major liposuction done...would it kill me or could it really help me.

i know we have some medical folks here, i would appreciate your help.
my pain is still bearable by the swelling is getting overwhelming. what if it doesnt stop...whats going to happen to me? im trying not to panic..i just wish i knew that there was a plan to help me. my primary care doctor wouldnt return my calls this week...i called 4 imes and his secretary said she was sorry ..he told her to tell me to call the new pain mgt doctor. it really pset me that he wouldnt call me. i was just in the hospital 2 weeks ago because i coulndt take the pain at home anymore i was a mess!

sorry for rambling...i just dont know where to turn to
i appreciate your help
Lori

I doubt that you might have not taken care of yourself after the surgery as the post surgical care is of utmost important for a quicker recovery. Still you have time and suggest get yourself checked again from a different doctor to know the exact cause of your dilemma you are in. Hope you the best.

I took excellent care of myself. I didnt know i had RSD at the time.
the surgery caused the RSD to happen. I immediately complained about the pain and swelling. they could se the swelling...they didnt know what to do after they gave me tons of antibiotics thinking there was an infection. which there wasnt. i saw 20 specialists before i had the 2nd sugrery, no one knew what to do. I have been to hell twice and back again.

Quote:

Originally Posted by Yestin (Post 766869)