I too want to find a doctor close by to try the IVIG treatment, with RSD I was also diagnosed with sarcoidosis which IVIG is used to treat it.

Yep I would like to try this aswell. Just trying to find a dr in my area willing to try.

Dear Debbie,
I wonder if you know the name of the brand of Iv Ig that you received, as well as the amount. I started with 15 grams of Privogen every 21 days. After I began receiving 20 grams of Privogen brand Iv Ig every 21 days, it took about 6 months to work. After 35 years living with RSD/CRPS that had spread throughout my body, I am now free of pain and other RSD/CRPS symptoms. I still feel rotten on hot days. I need to wear soft but supportive shoes and ration walking upon hard surfaces or for extended periods. At least I can tolerate shoes and socks. And, so long as I don't overdo on my feet (where CRPS began and was the most advanced and painful in my body), I live pain free and without any of the medications I once desperately needed to manage neuropathic pain, cramping, dystonia, involuntary movements, etc. My 32 year old daughter had advanced MS. She was in a wheelchair and could not see well enough to drive or read. She also received 20 grams of Privogen brand Iv Ig every 21 days. Now, she reads, drives and walks again. Her doctors can no longer tell by physical exam that she has MS!!! I have to wonder how important it is to receive enough Iv Ig for a long enough time. I KNOW that Iv Ig levels fall off rapidly after 2 weeks and that some people may need infusions every 2 weeks. For me and for my daughter, a 4 week interval was too much. And, I also KNOW how important it is to use a well formulated brand of Iv Ig. I KNOW that brands of Iv Ig formulated with sucrose are not as safe as those formulated with saline, like Privogen. My doctor is an infectious disease specialist. He has been giving Iv Ig treatments for 20 years and has never had an adverse event using Privogen. I'm interested that your infusions took 4 to 6 hours. I continue to get them and they take 2 to 3 hours. I always feel sad when I hear about someone like you who most likely did not receive enough "juice" for a long enough period of time to make the needed difference. My daughter and I continue receiving the amount (20 grams) the time interval (21 days) and the brand (Privogen) that work to keep us well. I wish you good healing!

Ambika - I have sent you a Private Message. take care,

Can I just say that I'm following this thread with interest because my pain doc has promised to look into IVIg for me.....
Ambica - you've given some really valuable and interesting information about this so thank you but you are posting some of the same information about your experience in nearly every post and it is getting a little repetitive in places!
No offence intended at all, I'm sure people are reading the thread and realise how passionate you are about this subject, but I am starting to skip parts of your posts because they seem to be the same information - and obviously that's not good because if there is something new I'm going to miss it.

Take care everyone and I hope you have a good day today

Bram.