Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-07-2011, 10:59 PM #11
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Conrats...I am in the appeal process because one of my docs didn't send in my medical records for my MRSA infection that started this ugly RSD journey..soo happy for you
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Old 04-07-2011, 11:12 PM #12
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Conrats...I am in the appeal process because one of my docs didn't send in my medical records for my MRSA infection that started this ugly RSD journey..soo happy for you
That makes it hard when they miss the time limits. But for me with WorkComp, SSDI, USPS disability retirement, the amt of paperwork for my Drs was unreal. I really felt bad about it.

My Postal Disability got removed because the dr didn't get all they asked together in time, but they asked for so much. It will come through. I won't get both full, but if I get the Postal Disability I get to keep my BC/BS ins and my life insurance. And if the amt I would get is more than my SSDI they will pay me the difference. I still have to go before the workcomp board of review, and the suit against the guy that hit me. Paperwork will never end.

But I can take care of my husband again. Praise the Lord.
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Old 04-08-2011, 12:14 AM #13
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Congratulations. What a blessing and a relief. I, too, was approved my first time and within just a few months with RSD/CRPS as my primary diagnosis. It is really good to see that so many people with RSD/CRPS are being approved now. Now if they could just find a cure or atleast an effective treatment...
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Old 04-08-2011, 02:53 AM #14
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Belated congratulations! I am very happy for you.

(And as to Cricket's point on cures or effective treatments, we have many of them already. It's just that private insurance companies - financial institutions often with the acumen of commercial banks, where the careers of individual players are driven far more by their contribution to quarterly profits than any estimate of the present value of long-term care to the firm as a whole - refuse to pay for them!)

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Old 04-08-2011, 06:36 AM #15
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Congrats Pat! On one hand, it is good, but on the other it kind of sucks. It gives validity to your condition. Financially it is wonderful, but I am sure that mentally it kind of sucks because it does mean that there is a problem.

My hearing is June 1st. I know it will be a major relief if everything goes well. I do have a "mental" problem with it though. It makes me sad and scared for my physical being.

Don't mean to be a downer - - congrats again!!!
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Old 04-08-2011, 06:41 AM #16
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I'm old too, so I figure that played in my favor. But as we all know having been approved is good, but I still can't walk more than 2 blocks or so, when I try what little housework I can do 30-45 min and I could enter my feet in the boiled lobster contest, I wear 2 size larger shoes than before the accident, I have to wear leggings all the time to keep my sensitivity down, I'm actually up to showering twice a week and getting dressed 3-4 days a week which is more hours than I sleep at night, which is about 2 1/2-3, I can't sleep in my own bed, I can't sit on the floor with my grandchildren, the slugs on my sidewalk beat me to the curb because my walking speed is slim to nil, I only wear shoes when required by law, I can't wear nylons(ok, i'm old enough that we did wear nylons all the time, besides even wearing a short skirt would just draw attention to the fact that my legs are purple, oh, let me count the ways that every thing I do every day is determined by the condition/attitude/size of my ankles/feet. Due to my short-term memory loss issues, I'm pretty sure I've forgotten at least a half a dozen things that inhibit my activities I did before the accident.

I am grateful that my application was accepted, I am overwhelmed with sadness because I did qualify.

I know everyone here understands that, but a couple of people seem to think I've won a prize and should celebrate. I am grateful to God that I am alive to enjoy the husband, children, and ten grandchildren and all my friends who help me, but the 1289 dollars a month does not give me back even a portion of the quality of life I had sixteen months ago when a gentleman in a hurry thought he could disregard the road sign that gave me the right away. No amt can reimburse me for the depression and anxiety that cannot be measured.

I'm an optimistic, upbeat, love life, the glass is half full, we can always find something positive to say, but I don't feel like celebrating that I will never be able to go back to a job I loved. I am relieved that the Dr who examined me could "see" my pain.

I try to start my day by counting my blessings, and today I will add the fact that I have an income now that I can again care for my husband.

Sorry, if this sounds like a rant, the ability to come here to neurotalk has been an important part of my adjustment to my new limited, but full life. Sorry, I gotta hurry off, I have six games of words w/friends going on and I'm in desperate need of a pot of tea!

Thank you all for you friendship, support, encouragement but especially for the validation that was no where else to be found. Finding this site is worth celebrating! Thank you Lord for leading me here.

my heart is full of gratitude for all I have,
I pray you all have a day where you see God's beauty,
GramE
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Last edited by gramE; 04-08-2011 at 06:46 AM. Reason: I didn't change nuttin' but I did forget a bunch of stuff!
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Old 04-08-2011, 11:08 AM #17
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Gram -This is wonderful news for all RSDers. I too was approved my 1st. time-no lawer-just tons of documentation. This was for SS disability. You are so right-God does know how much we can endure. For me it was loosing my business, moving 1100 miles, losing our dream retirement etc-etc. If I would have been denied, it probably would have pushed me over the pain mountain! Lets just keep praying that God will bless all who suffer with this monster that they get what they deserve after working all of their lives ( I am in my 60s ) now and paid into SS for many years-who should deny us what is rightully ours!! Fondly-Carol
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Old 04-08-2011, 02:19 PM #18
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Gram -This is wonderful news for all RSDers. I too was approved my 1st. time-no lawer-just tons of documentation. This was for SS disability. You are so right-God does know how much we can endure. For me it was loosing my business, moving 1100 miles, losing our dream retirement etc-etc. If I would have been denied, it probably would have pushed me over the pain mountain! Lets just keep praying that God will bless all who suffer with this monster that they get what they deserve after working all of their lives ( I am in my 60s ) now and paid into SS for many years-who should deny us what is rightully ours!! Fondly-Carol
Same here Carol, and not how I expected to spend my seventh decade, but God sometimes has other plans. And He has been faithful to provide. Did you read my post about the lost letter?
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Old 04-08-2011, 04:18 PM #19
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Same here Carol, and not how I expected to spend my seventh decade, but God sometimes has other plans. And He has been faithful to provide. Did you read my post about the lost letter?
No I must have missed that or just do not remember (RSD Forgetfulness) Bless you-Carol
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Old 04-09-2011, 02:02 AM #20
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No I must have missed that or just do not remember (RSD Forgetfulness) Bless you-Carol
I sent you a personal note to tell you it is in the Spiritual Sanctuary forum and is called Lost letter/God's faithfulness.
I do not remember that I have forgetfulness. I forget that i actuallly can remember some things.
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