Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-09-2011, 07:21 AM #21
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Originally Posted by edever34 View Post
Gram -This is wonderful news for all RSDers. I too was approved my 1st. time-no lawer-just tons of documentation. This was for SS disability. You are so right-God does know how much we can endure. For me it was loosing my business, moving 1100 miles, losing our dream retirement etc-etc. If I would have been denied, it probably would have pushed me over the pain mountain! Lets just keep praying that God will bless all who suffer with this monster that they get what they deserve after working all of their lives ( I am in my 60s ) now and paid into SS for many years-who should deny us what is rightully ours!! Fondly-Carol
i would just like to add that I too have worked for 25 years (am 40 yrs. old) and paid plenty into the SS system and it breaks my heart to see them deny (myself) and others partly due to age. I cannot imagine anybody in their right sound mind wanting to be approved for SS which pays a portion of prior income. As many on here, we all lose things and people in our lives due to this horrible disease. It is bad enough to lose our cars, jobs, homes and our minds, but to lose our sense of independence, friends, family (that get tired of our aches/pains). I sure would like to meet one person who would be excited to go through this because it is just not right.

I pray also that God will provide, but I remember also that the folks making the decisions on our applications are human also. Some make mistakes, some are not properly qualified and some are just down right wrong!!

I pray for a better system and a better day for all of us. i was just denied because of my age, having a college degree and for having 25 years work history (also because it would appear the documentation was not all there) but to think that I should be punished for being an educated, honest working person...they said with all of the above things mentioned above, they are sure I could find something......but did not state what.

(bilateral CT syndrome, basal joint(s) replaced, IP fusion(s), left MCP fusion and hardware removal, left DeQuarvain release, right trigger thumb release & now CRPS) basically both thumbs are fused and do not bend, plus....)

here is to fighting forward!!
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Old 04-09-2011, 10:49 PM #22
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denied 2 times and I tried to give the doctor records and he wouldn't take it. I can barely write my name and they say that I can do repetative work and that is the worst for me..
the pain is in my hands, feet, hips, back and my neck. I have a lawyer now...I don't know what to do. pray for me please.
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Old 04-09-2011, 11:11 PM #23
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Hello Katfeet,
And any others that haven't found our Social Security Disability forum also -
here- http://neurotalk.psychcentral.com/forum28.html
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Old 04-14-2011, 06:56 PM #24
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I had a headache pretty bad this morning, and still do but it is getting better. Letter said my first check will arrive on May 11.
Only 30 percent get approved on first application. God is my Provider.

And hopefully this will give hope to others with RSD. I did take info on RSD to my medical exam and the dr asked if she could keep it. I had printed some things off of the puzzles.

I am not going to be destitute next month. Hallelujah. I called my Doc because he said yesterday they would never approved me on my first try. Oh, how little his faith is.

We serve a mighty God!
H there my name is Susan. I have RSD and was also approved 1st try. I give all the glory to God Almighty. We were down to our last little bit of money (I am recvng W/C but is not enough) I was told by everyone that I wldnt b approved but I kept my faith and just told thm "we'll see". It could not have come at a better time. God is never late. I'm so happy for u, panother testimony of his provisions. It is a big relief for us both.
I hope u have a Pain free evening and a good nite sleep. I will keep u in my prayers

Your new friend in DE
Susan
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Old 04-15-2011, 12:26 AM #25
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A pain free night would be marvelous. I seem to be in a mini flare(?) or the beginning of one, or my last epidural is wearing off We've have a lot of stress around here, my brother-in-law has been critically ill, in hospice, and passed on to Glory on Tues. We going to his funeral tomorrow. I can't wear shoes and my legs are so purple and swollen I decided I was going to wear nylons. Last time I tried I felt like every bone in my foot was broken. So I went and bought what i though would be a big size, but not so that it would fall down. I had one leg on for about 1 1/2 minutes. I'm going to try again tomorrow. But I was excited because I had bought fake toenails. Mine are just nasty and years ago I had one removed and that just added to the nastiness. Well I'm all dressed and ready and going to zip these nails on. HA..everytime I would try to pull my foot up to my knee to reach the toes and then turn my foot a little or try to lift up one toe, my toes, my arch the ball of my foot was cramping like they were in a contest. I was so disappointed. So I decided to test my husband's devotion. He was out doing yard work, raking and sweating, and I asked him if he could come in and help me. He came in and saw that I was all ready, he was coming later, and asked what I needed him to do. I said I can't get my fake toenails on.(I've never worn them before) Boy did I get a look, but I explained the cramping and he conceded that he would try. even holding them up for him was causing them to cramp and tremble and I take two muscle relaxers a day. Well he perseverved, and after the fourth one, I said maybe you could start a new career. Needless to say I have right smart black/purple/red/blue manicured toes. If only it were as easy to fix the RSD. My husbands neuropsychiatrist says if they approve on first try you must have severe symptoms. I'd give back the approval if I could give back the RSD also.

Well, I think that there is a third option, and that is God's intervention in the process. That's the one I'm sticking with. PTL.

My midnight snack is over, maybe I can find a netflix movie to put me to sleep.

Congrats to you
pat in In
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Old 04-15-2011, 10:58 AM #26
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Just to give hope to those who may feel it's hopeless, some on these boards already know, my wife and I battled for her SSDI for 4 years. It was a very tough going navigating the system and the unknown. Last Nov 2 she was finally approved for SSDI yet a new battle started with SS over her 3.5 year retro-pay in which SS said was wrong that in-fact my wife was working when she said she wasn't. All of this over disability pay from her former employer. Suzy finally received her full retro-pay yesterday. Never give up---never. I can't speak for those with other health conditions but for RSD I can. I would do it all over again for my wife not just because I love her but over time I've learned plenty about this condition "there is no faking it" nobody fakes this disease. So, try your best on your worst day and never give up the fight because you will prevail.

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